6 months on it wow. Are you still positive for lyme? Obviously didn't seem to help symptoms much if at all??
I am usually positive, say two thirds of the time. The thing that intrigues my infectious disease specialists is that my titres go down, only to trend back up. I'm told that suggests active infection. I am also positive on the brand new MTTT CDC Lyme diagnostic. Moreover, for the past year my babesiosis labs have come back abnormal for both IgG and IgM - which typifies reactivated parasites. So, eh, not much good has been happening on the symptom front, but it's cool.
One thing that interests me about dapsone was that it's effects on folate and how it killed bacteria sound somewhat like bactrim. Bactrim I've found quite helpful while I'm on it buy I only do 10 day courses. Bactrim can treat babs to a certain degree???
I think I've been on bactrim, but I've lost track. I've been on so many things over the years, I started treatment years after I was infected, maybe 10 years. That's too long. But some of these drugs are purported to help portions of the infected, and since I want to be a portion of that portion, I try them.
Luck is fickle I guess.
What babs do you have? I've microti, which on paper can be treatable. So far, I've apparently failed though. duncani may be a different beast altogther; treatment news for that hasnt been as encouraging. There's at least a third babs I think but my memory has not been as sharp as I'd like for a while, except in spurts.
Anemia is a thing to watch out for, especially hemolytic anemia.
I suppose now Horowitz is pulsing his dapsone. Liegner is promoting disulferam. In-vitro persister busters. There are a bunch others thanks to Zhang at Johns Hopkins, and that NorthEastern guy whose name escapes me.. . All in the shadow of the Federal Tick-borne Disease Working Group.