Mya Symons
Mya Symons
- Messages
- 1,029
- Location
- Washington
I have both CFS and FMS. I have been on online fibro forums, but this is the first CFS/ME forum I have joined. When I first got sick, I had many doctors tell me it was an emotional or psychological problem. I believed them up until I got the involuntary muscle spasms and jerks. I did not believe that the muscle jerks could be due to stress, depression or PTSS. Further, after my son was diagnosed, I new there was some other reason.
Something I did not remember right away when they told me it was psychological (PTSD), was the swollen lymph nodes and low grade fever; which, for the first few years of my illness, I had all the time along with feeling like I constantly had the flu. You certainly can't fake those or think them into happening. So my question is for people who have had ME/CFS or XMRV for many years--What did your doctors blame the swollen lymph nodes on and the low grade fevers? I am curious--Did they give a reason for those? Mine was supposedly mono flare ups, but they never tested me for it.--insurance would not pay fo it.r
PS--I do think there are some great doctors out there who are willing to go outside the box and willing to try different treatments. I have not found any
, but I have hope.
Something I did not remember right away when they told me it was psychological (PTSD), was the swollen lymph nodes and low grade fever; which, for the first few years of my illness, I had all the time along with feeling like I constantly had the flu. You certainly can't fake those or think them into happening. So my question is for people who have had ME/CFS or XMRV for many years--What did your doctors blame the swollen lymph nodes on and the low grade fevers? I am curious--Did they give a reason for those? Mine was supposedly mono flare ups, but they never tested me for it.--insurance would not pay fo it.r
PS--I do think there are some great doctors out there who are willing to go outside the box and willing to try different treatments. I have not found any