When my MCS started a few months ago after becoming gradually more sensitive to chemicals until I reached a crisis where my brain felt really inflammed and I became spontaneously hypersensitive to the air in the spare bedroom, I started also developing food sensitivities and flushing reactions where my face and neck felt burning and turned red, often after eating certain things.
I can't remember if there was a pattern regards which foods caused it but I started thinking maybe I had histamine intolerance, or MCAS, or SIBO, so I tried going low sugar, low histamine, at the start I weighed 105KG, I quickly lost weight.
I noticed I was reacting to Wheetabix and milk, on one occasion flushing badly but also coughing, had to go in the garden to fresh air. Started avoiding wheat. Couldn't eat much strong cheese but seemed ok with mozarella. Did a 'food intolerance test' a few weeks later and it showed borderline to wheat, but milk was the highest score, 100, garlic and apple were also high. It was strange because i'd been drinking glasses of just milk to test my reaction and was ok, but on another occasion a chocolate bar caused a stomach ache and muscle aches / weakness temporarily.
Started avoiding milk, had lost at least 10KG weight by this point. Now coming up to more recently, march wasn't a great month and I felt tired often and brain was clouded and dysfunctional, late march I was eating a lot of cereals, some had barely in ( gluten ), cutting that out helped some of my worse brain issues. Still was eating a lot of coco pops ( rice based with cocoa and a little sugary ) with soya milk, seemed ok on this food. Was down to about 90KG at this point.
In the past couple of weeks I noticed my stomach was slowing down, I wasn't going to the toilet everyday but rather every 2 or 3 days, now its maybe twice a week. I was constantly fatigued and sensitive to minor stress e.g. video games, but it wasn't PEM, I tried small amounts of activated charcoal and it radically improved my health, fatigue cleared up rapidly and my brain felt nearer how it did a year or 2 ago. My PEM was greatly reduced as was the accompanying dehydration. Sadly overdoing it with going out / muscle strain caused my leg muscles to become very sore and the food reactions came back, I reacted to chicken with face flushing. I went onto a fruit and vegetable diet for a few days to recover, but my stomach felt more sensitive. I'm back on normal foods now almost, but I am down to around 85KG. Digestion is slow, muscles still sore even my arms now, just from using computer makes them sore, this happened in 2016 when i also had food sensitivities, I had severe cfs then but it doesn't feel like that now.
I suspect my flushing and food sensitivities are due to leaky gut, but I don't know about the exercise reactions and sore muscles ( new ). Any ideas ? anyone experienced similar ?
I can't remember if there was a pattern regards which foods caused it but I started thinking maybe I had histamine intolerance, or MCAS, or SIBO, so I tried going low sugar, low histamine, at the start I weighed 105KG, I quickly lost weight.
I noticed I was reacting to Wheetabix and milk, on one occasion flushing badly but also coughing, had to go in the garden to fresh air. Started avoiding wheat. Couldn't eat much strong cheese but seemed ok with mozarella. Did a 'food intolerance test' a few weeks later and it showed borderline to wheat, but milk was the highest score, 100, garlic and apple were also high. It was strange because i'd been drinking glasses of just milk to test my reaction and was ok, but on another occasion a chocolate bar caused a stomach ache and muscle aches / weakness temporarily.
Started avoiding milk, had lost at least 10KG weight by this point. Now coming up to more recently, march wasn't a great month and I felt tired often and brain was clouded and dysfunctional, late march I was eating a lot of cereals, some had barely in ( gluten ), cutting that out helped some of my worse brain issues. Still was eating a lot of coco pops ( rice based with cocoa and a little sugary ) with soya milk, seemed ok on this food. Was down to about 90KG at this point.
In the past couple of weeks I noticed my stomach was slowing down, I wasn't going to the toilet everyday but rather every 2 or 3 days, now its maybe twice a week. I was constantly fatigued and sensitive to minor stress e.g. video games, but it wasn't PEM, I tried small amounts of activated charcoal and it radically improved my health, fatigue cleared up rapidly and my brain felt nearer how it did a year or 2 ago. My PEM was greatly reduced as was the accompanying dehydration. Sadly overdoing it with going out / muscle strain caused my leg muscles to become very sore and the food reactions came back, I reacted to chicken with face flushing. I went onto a fruit and vegetable diet for a few days to recover, but my stomach felt more sensitive. I'm back on normal foods now almost, but I am down to around 85KG. Digestion is slow, muscles still sore even my arms now, just from using computer makes them sore, this happened in 2016 when i also had food sensitivities, I had severe cfs then but it doesn't feel like that now.
I suspect my flushing and food sensitivities are due to leaky gut, but I don't know about the exercise reactions and sore muscles ( new ). Any ideas ? anyone experienced similar ?
