@Gingergrrl - That is all so fantastic and no not TMI. In a way what you describe is similar to the effects I get from very low dose SCIG. without it I have far less energy and am almost bedbound so im stiking with it for now too.
IVIG is also very expensive in the UK - but you can only get it on the NHS if you have primary immune deficiency. I dont fulfil the need for it here and anyway PWME dont get any real medical help in the UK so I get it prescribed by a Dr I pay to see in Europe. He prescribes it then I buy it over there and bring it home - it is not that expensive to buy in that country for lower doses.
IVIG is also very expensive in the UK - but you can only get it on the NHS if you have primary immune deficiency. I dont fulfil the need for it here and anyway PWME dont get any real medical help in the UK so I get it prescribed by a Dr I pay to see in Europe. He prescribes it then I buy it over there and bring it home - it is not that expensive to buy in that country for lower doses.