gbells
Improved ME from 2 to 6
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I have no qualms about it. I would get it if it was offered.
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Coronavirus Vaccine(s)
- Thread starter Fat Viking
- Start date
I have no qualms about it. I would get it if it was offered.
I had a nasty reaction to the only flu jab I ever had, so I am very concerned about having this vaccine. For all I know it might not contain a single ingredient that was in the flu jab; if that was the case I'd feel better about having it. Either way, if I do have it I'll make sure it's somewhere emergency treatment is available if I need it. I'll be on the lookout for M.E. patient experiences in the meantime.
Hi @Booble. On the whole I agree with what you've said, however the fact is that we do have to look at the side-effects and go from there. e.g. I know that the first two vaccinations aren't something I can have because of health problems. Did anyone tell me?....no, but I did find them on my own. The second one is especially dangerous. Using this vaccine can bring on an attack of Autoimmune Encephalitis, it's actually listed as a side-effect.
It isn't known if the immunization can cause the damage to return to the same part of the brain, or a different area altogether. So I know that I'll have to wait at least for the 3rd vaccine. I understand that and will try to protect myself as much as possible in the meantime.
For those thinking their families are safe, may I tell you that 3 different members of our family have fallen ill at 3 different times over the past 6 mos. Quarantine is the only effective method and no, of course it isn't pleasant, but then not being able to attend school (children) and going to restaurants isn't pleasant either.
I had the shingles vaccine a number of mos. ago. I tried to read up as much as possible on it, none of my doctors could give a yes or no answer, but I decided that I couldn't live with having that illness again. I had 3 rounds, one right after the other which left me bedridden for about a year, and a 4th one some years earlier. People don't understand that the illness is worse with each outbreak and it can drive you out of your mind to begin with. I took it upon myself to have the vaccine....and I had no reaction whatsoever. Not even a sore arm. So the same will have to be true of this third vaccination. I'll do due diligence, hope for the best but no, there are no guarantees for any of it. The smallpox people who wanted the vaccination were very brave indeed. We owe them so much...and yet how many of us have never heard the history of that particular vaccine?
Thanks for bringing it to our attention. Yours, Lenora.
It isn't known if the immunization can cause the damage to return to the same part of the brain, or a different area altogether. So I know that I'll have to wait at least for the 3rd vaccine. I understand that and will try to protect myself as much as possible in the meantime.
For those thinking their families are safe, may I tell you that 3 different members of our family have fallen ill at 3 different times over the past 6 mos. Quarantine is the only effective method and no, of course it isn't pleasant, but then not being able to attend school (children) and going to restaurants isn't pleasant either.
I had the shingles vaccine a number of mos. ago. I tried to read up as much as possible on it, none of my doctors could give a yes or no answer, but I decided that I couldn't live with having that illness again. I had 3 rounds, one right after the other which left me bedridden for about a year, and a 4th one some years earlier. People don't understand that the illness is worse with each outbreak and it can drive you out of your mind to begin with. I took it upon myself to have the vaccine....and I had no reaction whatsoever. Not even a sore arm. So the same will have to be true of this third vaccination. I'll do due diligence, hope for the best but no, there are no guarantees for any of it. The smallpox people who wanted the vaccination were very brave indeed. We owe them so much...and yet how many of us have never heard the history of that particular vaccine?
Thanks for bringing it to our attention. Yours, Lenora.
I agree with all of that. I'm desperately hoping that by the time my turn comes across either there are enough people vaccinated that I won't need to take the personal risk or that their are more vaccine options or that they have enough data to have tweaked the formulas. That said, it's critical that we eradicate this virus so hopefully those with constitutions that are stronger (or less stronger if by definition our bodies react more strongly to things) can lead the charge.
Oh, and Lenora, I had a shellfish crisis as well! Years ago my aunt took me to a series of "cooking classes" where you go to different restaurants and they teach you how to make the food and then they serve some to you. Well, on one of them they were making soft shell crab. The whole concept seemed gross -- putting the whole crab into batter and then sticking it into oil. Despite being a former New Englander I've never cared for shellfish but I bucked up and ate about half the crab and then let my aunt have the rest. The next day the hives started on my belly and worked their way up, up, up. Took weeks, maybe months for them to go away for good.
It was odd reaction for sure. They gave me the shot at the ER and then another one about hour later before they would let me leave the hospital. After that it would go away but come come back upon taking a hot shower or any kind of heat or heating up of myself through exercise or even emotions.
I'm glad you can continue to enjoy fish. I eat fish as well but stay away from shellfish.
Back to the COVID and the shellfish allergic doctor --- one of my colleague's wife had a severe hive outbreak after taking her first dose of the vaccine. She tried waiting it out a bit but they were making there way up her neck, etc. and they told her to go in to the ER. Gave her shots, etc. Her hives were severe, on all parts of her body from head to toe, very itchy and lasted for I think about a week. It will be interesting to see if they have her take the second dose of vaccine or not.
I'm glad you can continue to enjoy fish. I eat fish as well but stay away from shellfish.
Back to the COVID and the shellfish allergic doctor --- one of my colleague's wife had a severe hive outbreak after taking her first dose of the vaccine. She tried waiting it out a bit but they were making there way up her neck, etc. and they told her to go in to the ER. Gave her shots, etc. Her hives were severe, on all parts of her body from head to toe, very itchy and lasted for I think about a week. It will be interesting to see if they have her take the second dose of vaccine or not.
vision blue
Senior Member
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I coudln't read thru all the posts, so maybe this was answered. What are the differences in ingredients for Moderna vs Pfizer vax? Guess i should read thru all the posts...Anything that puts my immune system into overdrive will be a huge setback for me now. anyway, that's not a helpful contribution, so i'll stop rambling
Gingergrrl
Senior Member
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@vision blue I went back through this thread and the Pfizer ingredients are in posts #102 and #107 and the Moderna ingredients are in post #130. It was confusing b/c this thread has been merged with another thread (and also split into separate threads) a few times.
I am in the same situation as you and anything that is immuno-stimulatory and pushes my immune system into overdrive (like these COVID vaccines) could end my remission. I have been on an endless quest to find info that explicitly states that these vaccines are safe for someone in my situation but so far, I cannot find anything. In fact, I keep finding info saying that people with a history of autoimmunity and anaphylaxis (I have both) should wait until there is more info and not get the vaccines yet. In my case, the vaccine will not be available for my age group for many more months, so this is all hypothetical.
I have also been trying to find the ingredients for the COVID Johnson & Johnson vaccine (which is a single dose vaccine and not an mRNA vaccine) but cannot find the ingredients anywhere. I am wondering if this one is less immuno-stimulatory (since it is only one dose) but I don't know if it contains adjuvants (which would make it more immuno-stimulatory vs. less). Supposedly there are several more vaccines that are soon to be released in the US, including the J&J vaccine.
gbells
Improved ME from 2 to 6
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- Alexandria, VA USA
By the way, a MD just died from thrombosis 3 days after receiving the vaccination and it is believed to have caused it. Given that the protection only lasts 8 months I'll stick with masks and low inflamation eating and wait for it to blow over.
Pyrrhus
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I believe this person was already infected with the coronavirus at the same time that they received the vaccine, so one can't say that the vaccine caused it.
Gingergrrl
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I got this e-mail a few days ago from TMS (The Mast Cell Disease Society) and copied it below. It is very important info for any MCAS patients who develop an allergic reaction from the COVID vaccine. It explains how their doctor can contact TMS to provide data. No one has been formally gathering or collecting this data and TMS is now trying to do this which is crucial to the Mast Cell community.
COVID19 Vaccine Update
Many of our mast cell specialists here in the US and in Europe have been collaborating on a survey designed to collect data on the available COVID19 vaccinations and the reactions to them specifically in patients with a mast cell disease. It has come to our attention that some patients may be experiencing adverse reactions to a COVID19 vaccine that requires emergency room treatment, but that information is never being documented anywhere. We contacted Mariana Castells, MD, PhD, who is one of the original organizers of the survey on the vaccine reactions to ask how to handle this. She gave us a very specific pathway that physicians of patients with mast cell disease who are experiencing a severe reaction can use to report the reaction to the survey authors.
Vaccine side effects that are considered to be within normal limits are described here in this CDC document.
If you experience any severe reaction beyond what is described in this document, including anaphylaxis requiring treatment with injectable epinephrine or any significant flaring of symptoms of mast cell activation, please have your physician contact us at: nurses@tmsforacure.org.
Thank you for helping us to collect this important data, which will be critical in keeping members of our community safe.
LaurelB
Senior Member
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- 139
"I have also been trying to find the ingredients for the COVID Johnson & Johnson vaccine (which is a single dose vaccine and not an mRNA vaccine) but cannot find the ingredients anywhere. "
Here is the list of ingredients for Johnson & Johnson vaccine.
https://www.fda.gov/media/146305/download
The Janssen COVID-19 Vaccine includes the following ingredients:recombinant, replication-incompetentadenovirus type 26expressing the SARS-CoV-2 spike protein, citric acid monohydrate, trisodium citrate dihydrate, ethanol, 2-hydroxypropyl-β-cyclodextrin (HBCD), polysorbate-80, sodium chloride
Here is the list of ingredients for Johnson & Johnson vaccine.
https://www.fda.gov/media/146305/download
The Janssen COVID-19 Vaccine includes the following ingredients:recombinant, replication-incompetentadenovirus type 26expressing the SARS-CoV-2 spike protein, citric acid monohydrate, trisodium citrate dihydrate, ethanol, 2-hydroxypropyl-β-cyclodextrin (HBCD), polysorbate-80, sodium chloride
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andyguitar
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Yes it is. But in the UK it is not expected that those who might react to Polyethylene Glycol (PEG) would react to Polysorbate-80.
Do any of you have allergies that you are concerned about in regard to the vaccines?
I am allergic to contrast dye (hives) and shellfish (also hives) so I'm concerned. I have only had the dye once and have not had shellfish since the hives but it worries me. The shellfish hives were excessive and took weeks before they fully cleared. I also have allergies to things on skin. A few years ago I put this crap on the bags under my eyes that my hair cutter was offering and it burned my skin!
I am allergic to contrast dye (hives) and shellfish (also hives) so I'm concerned. I have only had the dye once and have not had shellfish since the hives but it worries me. The shellfish hives were excessive and took weeks before they fully cleared. I also have allergies to things on skin. A few years ago I put this crap on the bags under my eyes that my hair cutter was offering and it burned my skin!
Oh, that's nice to hear!
andyguitar
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Yes, it's an emulsifier found in foods,medicines and cosmetics.