justinreilly
Senior Member
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Contingency Pledges (for name change to ME, etc.)
Ever feel frustrated that the government and our ME organizations aren't doing the things you want? Well, we can do something about it! Alone we have limited influence, but together, with our pledged donations, however small, we can get them to change!
I have started a Wiki thread (here on PR) for anyone who wants to make a contingency pledge. A contingency pledge is a pledge of a donation to research (or other worthy cause) contingent on an organization taking some action you want. It's a way to make your donations go much further and do more good for everyone by improving our organizations (in addition to supporting them financially).
Best of all, you don't give any money until the organization changes the way YOU want! We make a powerful statement by putting our money where our mouth is when calling for change. And either the org changes the way you want and great research gets funded or you never part with any money. There's no downside. : )
For example, I have pledged $12K for CDC to change the name of the disease ME (including $5K for ICD 10CM). I doubt this will happen any time soon, in which case this pledge doesn't affect me (I don't have to shell out any money). However, if many patients get together here and in other ways and very loudly demand that the name be changed, this will increase the chance that CDC will change it at some point. If the name changes I will have to scrounge and eat ramen for the rest of my life
but I will do so very happily knowing that we have a proper name for our disease, doctors will take us more seriously and that I have donated a lot to great research! A real win-win for us all.
The discussion is on this thread:
http://forums.phoenixrising.me/show...ld-I-donate-to&p=230108&viewfull=1#post230108
You can add your pledge to the wiki thread here:
http://forums.phoenixrising.me/showthread.php?15470-Pledges&p=230364#post230364
Ever feel frustrated that the government and our ME organizations aren't doing the things you want? Well, we can do something about it! Alone we have limited influence, but together, with our pledged donations, however small, we can get them to change!
I have started a Wiki thread (here on PR) for anyone who wants to make a contingency pledge. A contingency pledge is a pledge of a donation to research (or other worthy cause) contingent on an organization taking some action you want. It's a way to make your donations go much further and do more good for everyone by improving our organizations (in addition to supporting them financially).
Best of all, you don't give any money until the organization changes the way YOU want! We make a powerful statement by putting our money where our mouth is when calling for change. And either the org changes the way you want and great research gets funded or you never part with any money. There's no downside. : )
For example, I have pledged $12K for CDC to change the name of the disease ME (including $5K for ICD 10CM). I doubt this will happen any time soon, in which case this pledge doesn't affect me (I don't have to shell out any money). However, if many patients get together here and in other ways and very loudly demand that the name be changed, this will increase the chance that CDC will change it at some point. If the name changes I will have to scrounge and eat ramen for the rest of my life
but I will do so very happily knowing that we have a proper name for our disease, doctors will take us more seriously and that I have donated a lot to great research! A real win-win for us all.The discussion is on this thread:
http://forums.phoenixrising.me/show...ld-I-donate-to&p=230108&viewfull=1#post230108
You can add your pledge to the wiki thread here:
http://forums.phoenixrising.me/showthread.php?15470-Pledges&p=230364#post230364
