I need some help please. Many of you know a lot more about the science of CFS than I do.
My sister is sick also. She was diagnosed with CFS in late 1980s / early 1990s. She later determined she has depression. Now she says she has dysautonomia and depression. When I talk to her about CFS, she doesn't embrace it. I think that when she got sick, there was so little known and she was told there is nothing that can be done, so that she just doesn't want to go back there again. But I have tried to inform her of the many discoveries and therefore, therapies have come about in the last few years. It's a different CFS today than back when she was diagnosed. I told her about XMRV discovery. She said, "But that's not me. What I have I have had since I was born." She said she remembers having trouble with fatigue as a teenager. She also got angry bladder problems as a teenager. So she doesn't think she caught something later, late 1980s, after she married. But it did seem to get worse then.
Now, for me, I have had vasovagal hypotension since I was five. I faint when I am under sudden and severe embarrassment or pain. And I can look back and see subtle signs that something wasn't right for a long time. I had TMJ in my 30s such that I couldn't open my mouth but just enough to slide a fork in. I had depression in my late 20s. I had itchy rash on my knuckles for months that my doctor said was an immune response to dish washer soap, likely. I have had adult acne all my adult life. But it wasn't until I was 38 that I caught the virus that wouldn't go away, and fatigue problems started afterward. At first, the manifestation was associated with my periods. Two years later, I suddenly plummeted with signs of fibromyalgia also.
So, I am trying to figure out if I had this from birth or very early childhood (because of the vasovagal thing) or did I catch the virus later.
So you layman scientists, please explain to me how XMRV fits into the central nervous system problems. Mikovitz said XMRV can explain all the symptoms of CFS. But I wonder how the virus can explain the central nervous system problems. I understand how it can explain all the rest.
Tina
My sister is sick also. She was diagnosed with CFS in late 1980s / early 1990s. She later determined she has depression. Now she says she has dysautonomia and depression. When I talk to her about CFS, she doesn't embrace it. I think that when she got sick, there was so little known and she was told there is nothing that can be done, so that she just doesn't want to go back there again. But I have tried to inform her of the many discoveries and therefore, therapies have come about in the last few years. It's a different CFS today than back when she was diagnosed. I told her about XMRV discovery. She said, "But that's not me. What I have I have had since I was born." She said she remembers having trouble with fatigue as a teenager. She also got angry bladder problems as a teenager. So she doesn't think she caught something later, late 1980s, after she married. But it did seem to get worse then.
Now, for me, I have had vasovagal hypotension since I was five. I faint when I am under sudden and severe embarrassment or pain. And I can look back and see subtle signs that something wasn't right for a long time. I had TMJ in my 30s such that I couldn't open my mouth but just enough to slide a fork in. I had depression in my late 20s. I had itchy rash on my knuckles for months that my doctor said was an immune response to dish washer soap, likely. I have had adult acne all my adult life. But it wasn't until I was 38 that I caught the virus that wouldn't go away, and fatigue problems started afterward. At first, the manifestation was associated with my periods. Two years later, I suddenly plummeted with signs of fibromyalgia also.
So, I am trying to figure out if I had this from birth or very early childhood (because of the vasovagal thing) or did I catch the virus later.
So you layman scientists, please explain to me how XMRV fits into the central nervous system problems. Mikovitz said XMRV can explain all the symptoms of CFS. But I wonder how the virus can explain the central nervous system problems. I understand how it can explain all the rest.
Tina