Ciprofloxacin again - a never ending story

hmnr asg

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Yes, but that is typical. Side effects often occur months later. I can only explain this with the replication circle of cells in your body (more and more damaged mitochondria).
Trust me, I'm following this since 2019 as a Community Ambassador for OMF and have met dozens of pwME who have a similar trajectory.
Thanks for letting me know. I guess I should contact Fereshteh.
 
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SWAlexander

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That's interesting also bc Ron mentioned sticky blood years ago. But all do a always tell me that my blood looks completely normal.
"...blood looks completely normal." This is what my PCP told me. I demanded a D-Dimer. The follow-up Bloodtest showed the number 3003. A sonogram confirmed several clots in my left leg.
What I´m saying is, the road of discovery does not end with one or two tests. I was very glad I insisted because she tried to shrug it off.
 
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"...blood looks completely normal." This is what my PCP told me. I demanded a D-Dimer. The follow-up Bloodtest showed the number 3003. A sonogram confirmed several clots in my left leg.
What I´m saying is, the road of discovery does not end with one or two tests. I was very glad I insisted because she tried to shrug it off.
Many thanks! I will do a d-dimer too!
 

SWAlexander

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Martin, have you been tested for X-linked (ALD)? It is ABCD1 gene variant.
See if any symptoms would fit yours. but only a test can reveal if you have high phytanic acid.
https://medlineplus.gov/genetics/condition/x-linked-adrenoleukodystrophy/

The test is paid by US insurance but PCPs need instruction from the lab, just because most never heard of ALD.
The lab blood test code is "VLCFA"?
 
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SWAlexander

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