We are sorry that although the room was full for the conference, there were only two doctors in CFS. Why have not others been? The Health Department also has been conspicuous by his absence at an event of such importance.
(CFS League-Liga SFC)
If I'm understanding correctly, they gave a lecture to the hematologists at the leading hospital in Catalonia (Vall d'Hebron). I wonder if Spain will be the next country to ban CFS patients' blood donations?
The good news I've read in the spanish summary is "Si que ha comentado la Dra Mikovitz que tiene "preparado" 4 artculos esperando publicacin con las ltimas "novedades" y que est a punto de publicar." For the ones who don't understand Spanish .. Dr. Mikovitz has written 4 new papers with the lasted news and some are just about to be published. We are waiting!
You probably mean this: "Yesterday I visited with Dr. Alegre and he seemed to be impressed by what Dr. Mikovits said and the possible consequences of XMRV. In fact, he said that at 3:00 PM he was giving a lecture to the hematologists of the Vall d'Hebron on the subject."
I wouldn't go so fast about Spain banning CFS people from donating blood. CFS is very small here and politicians have little pressure, and with this wild crisis (20% unemployment and threat of national bankruptcy as in Greece) they surely will not be running to admit the illness and spend lots of money in us by paying disability pensions, research, etc.
Dr.Alegre is probably the most known Spanish doctor in CFS. He is an internist and works for the Social Security in this big hospital in Barcelona named Vall d'Hebron. But he is a very controversial one.
People from all over Spain go to see him in Barcelona because of his knowledge and because he is the only one that is giving patients official medical reports to present to our social security for disability request. Our Social Security will not pay attention to any medical reports written by private doctors who don't work for the social security. Meaning this guy has waiting lists of months.
So, on one hand he is indeed one who knows well the illness (in this video he explains it perfectly well http://vimeo.com/341273). On the other hand he is subject of accusations of being involved with politicians in a way that the community of patients disagrees. I don't know the details but I have been told ugly things about him in this sense.
I went to see him too and the consultation was a joke. He didn't check anything at all. Just asked me a questionaire in 5 minutes and diagnosed me with very severe CFS. he prescribed me a hell of a lot of medications and sent me off. The list of those meds is hilarious. Three different antidepressants. One tranquillizer and one sleeping pill. Cortisone and Fludrocortisone. Pain killers. Anti-inflammatories. Etc. Needless to say I could only laugh and didn't come back and didn't take any of that. If that is the treatment he prescribes, he must be making the patients much more sick.
His ex-wife is also a CFS doctor. A very expensive one in Madrid. She charges 200 $ for a visit. And people are saying that she is opening a CFS clinic in Madrid with Dr. De Meirleir (the famous De Meirleir from Brussels). Everyone feels they go for the money.
Dr.Alegre told me that he believed that the way to solve CFS was through genomics and proteomics. He explains it in that video, but it's in Spanish. He has been working much in this field and I don't know what he thinks now of XMRV.