Too bad I haven't had any relief in six yearsWe had another member who was experiencing something similar: https://forums.phoenixrising.me/threads/is-it-a-new-disease-or-its-cfs.19062/ (I also think there was a more recent thread too but I cannot find it right now.)
Anyway, I'm sorry you're going through all that. Welcome to PR!!!
Thank you for your replyHello......I first heard of the 'Chinese Disease' on here probably 5 years or more ago. I asked one of the men involved in medicine to answer the very distressed person involved.
I understand that there is a large outbreak of it in Toronto....and even NYC for all I know. Does anyone know?
What are you doing for treatment at this time, or is it something you've decided you can presently live with.?
Please tell us more about it......knowing about all diseases helps. Are the symptoms now something you can live with?
Also, how old were you when this first occurred. It seems that sexual transmission is part of the illness, which surprises me that nothing has been announced even after the AIDS epidemic. I also understand this includes heterosexual sex.
Canker sores are common to the population, but have you noticed that others with this illness began with a canker sore? Again, stomach problems become more prevalent as we age. The other symptoms could definitely be viral.....who knows? Is there another name for this illness?
I read science magazines and the like, watch newsworthy shows and I've yet to see it mentioned. I'm certainly NOT doubting you and hope to learn more about this illness. Yours, Lenora
I'm sexually infected and it seems like only sexually infected people die because people from other ways don't seem to be as sick as I amHello......I first heard of the 'Chinese Disease' on here probably 5 years or more ago. I asked one of the men involved in medicine to answer the very distressed person involved.
I understand that there is a large outbreak of it in Toronto....and even NYC for all I know. Does anyone know?
What are you doing for treatment at this time, or is it something you've decided you can presently live with.?
Please tell us more about it......knowing about all diseases helps. Are the symptoms now something you can live with?
Also, how old were you when this first occurred. It seems that sexual transmission is part of the illness, which surprises me that nothing has been announced even after the AIDS epidemic. I also understand this includes heterosexual sex.
Canker sores are common to the population, but have you noticed that others with this illness began with a canker sore? Again, stomach problems become more prevalent as we age. The other symptoms could definitely be viral.....who knows? Is there another name for this illness?
I read science magazines and the like, watch newsworthy shows and I've yet to see it mentioned. I'm certainly NOT doubting you and hope to learn more about this illness. Yours, Lenora
I don't know but Hip talked about it in post #10 of that thread I linked.I understand that there is a large outbreak of it in Toronto....and even NYC for all I know. Does anyone know?
Traditional medicine hasn't been of any use and I haven't tried any antiviral drugs yet and I'm in a state of waiting to dieI don't know but Hip talked about it in post #10 of that thread I linked.
@woshishui, it sounds so hard. Do you have access to any antivirals even herbals maybe like Isatis Root or Lomatium? I've heard they have antiviral properties. Even maybe licorice root though you have to cycle your usage of that or it can cause problems with potassium levels, high blood pressure and heart issues.
Saying a prayer.
Some of the biggest hospitals might be able to diagnose this for you@woshishui.....keep trying, please. Have you tried avocados? I eat a lot of them b/c I happen to like them. They'll help with weight, IMMUNE problems and blood pressure. Just let them ripen on the counter, spread on toast or I even have them with something like matzo crackers and a sliced up tomato. I swear I could eat two of them/day.
Why haven't we heard more about this virus (if that's what it is). In each case I've heard about, a sexual encounter was the beginning and then it seems to move to other family members (through general contact). So it's not unknown. Do you know anything about other countries? How they're affected? Are there any groups that help with this problem, well known hospitals? Sorry to make you feel like you're under attack, but the general population doesn't seem to be aware of this illness. Of course COVID put everything else "on hold." I'm sorry for your illness and especially sorry for the aloneness that you must feel. I join Judee in saying a prayer for you and all others suffering from this illness. Yours, Lenora
I didn't find anyone from another country@woshishui.....keep trying, please. Have you tried avocados? I eat a lot of them b/c I happen to like them. They'll help with weight, IMMUNE problems and blood pressure. Just let them ripen on the counter, spread on toast or I even have them with something like matzo crackers and a sliced up tomato. I swear I could eat two of them/day.
Why haven't we heard more about this virus (if that's what it is). In each case I've heard about, a sexual encounter was the beginning and then it seems to move to other family members (through general contact). So it's not unknown. Do you know anything about other countries? How they're affected? Are there any groups that help with this problem, well known hospitals? Sorry to make you feel like you're under attack, but the general population doesn't seem to be aware of this illness. Of course COVID put everything else "on hold." I'm sorry for your illness and especially sorry for the aloneness that you must feel. I join Judee in saying a prayer for you and all others suffering from this illness. Yours, Lenora
But surely you joined PR hoping for some hope. Like @lenora said, please don't give up.I'm in a state of waiting to die
Now I am very bad parents take care of me
I was unable to continue working and studying in fact I was unable to study properly for the first year of my illness
Without my home is very clean Maybe there is something wrong with the use of EnglishIn your introductory post, you said your symptoms were "MILD: Near-normal life activity level, but still symptomatic".
But in the above quoted text, you say you are unable to continue working. If you are too ill to work, this normally corresponds to moderate or severe ME/CFS.
There is a 5-point ME/CFS scale of: very severe, severe, moderate, mild, remission.
Many patients I have communicated with from China who have the Chinese HIV-like virus (yinzibing) find that their health dramatically improves after about 2 years with the virus. The are not completely cured, but after two years many find that they are 90% better, just through natural healing.
But you have had your virus since 2017, with no improvements.
Is there anything polluting in your home environment which might be preventing natural healing. For example, if there is a mould growing on the walls inside the home, this can negatively affect the immune system.
My digestive system is in such bad shape that my immune system has no chance of recoveringIn your introductory post, you said your symptoms were "MILD: Near-normal life activity level, but still symptomatic".
But in the above quoted text, you say you are unable to continue working. If you are too ill to work, this normally corresponds to moderate or severe ME/CFS.
There is a 5-point ME/CFS scale of: very severe, severe, moderate, mild, remission.
Many patients I have communicated with from China who have the Chinese HIV-like virus (yinzibing) find that their health dramatically improves after about 2 years with the virus. The are not completely cured, but after two years many find that they are 90% better, just through natural healing.
But you have had your virus since 2017, with no improvements.
Is there anything polluting in your home environment which might be preventing natural healing. For example, if there is a mould growing on the walls inside the home, this can negatively affect the immune system.
Could you watch a video for me? I want to know if there is any useful doctor information in itIn your introductory post, you said your symptoms were "MILD: Near-normal life activity level, but still symptomatic".
But in the above quoted text, you say you are unable to continue working. If you are too ill to work, this normally corresponds to moderate or severe ME/CFS.
There is a 5-point ME/CFS scale of: very severe, severe, moderate, mild, remission.
Many patients I have communicated with from China who have the Chinese HIV-like virus (yinzibing) find that their health dramatically improves after about 2 years with the virus. The are not completely cured, but after two years many find that they are 90% better, just through natural healing.
But you have had your virus since 2017, with no improvements.
Is there anything polluting in your home environment which might be preventing natural healing. For example, if there is a mould growing on the walls inside the home, this can negatively affect the immune system.
The most important problem is that my cd4 and cd8 are going downIn your introductory post, you said your symptoms were "MILD: Near-normal life activity level, but still symptomatic".
But in the above quoted text, you say you are unable to continue working. If you are too ill to work, this normally corresponds to moderate or severe ME/CFS.
There is a 5-point ME/CFS scale of: very severe, severe, moderate, mild, remission.
Many patients I have communicated with from China who have the Chinese HIV-like virus (yinzibing) find that their health dramatically improves after about 2 years with the virus. The are not completely cured, but after two years many find that they are 90% better, just through natural healing.
But you have had your virus since 2017, with no improvements.
Is there anything polluting in your home environment which might be preventing natural healing. For example, if there is a mould growing on the walls inside the home, this can negatively affect the immune system.