I looked into CM about 4 years ago, excited that it could be my answer, but the MRI results came back negative. If there's a specialist I could send the results to for a second opinion then I just might consider it...so complicated, these things.
However I have found an answer that appears to address the issue - or a similar issue - without surgery, and that is cranial osteopathy. My osteo reports that the base of my skull is compacted inward, putting pressure on the vagus nerve, brain stem, eustachian tubes, etc. She is doing manipulative work on the bone structure to open the area back up. After just two visits I can feel my ears finally beginning to drain properly (past 5 1/2 years of fluid behind the ears, abx did nothing, constant ear infections as a kid, tubes in ears) and there is much less pressure in my head. The relief felt from this method has thus far been beyond what I could have hoped was possible.
As I have significant issues with the vagus nerve (IBS so extreme it requires an ambulance) I'm hopeful that by relieving the pressure on it I can get some resolution there. And if the brain stem is no longer squished that'd be nice too. :Retro tongue: I'm looking forward to seeing how much improvement can be gained.
I don't know if I technically have CM or not; it's been a while since I researched it as thoroughly as I did a few years ago and brainfog is getting the better of me. But if there's a possibility of non-surgical healing then it sounds worth looking into. A quick search showed up
this prohealth article.