CFSAC webinar 17 & 18 May 2016

Sasha

Fine, thank you
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Edit: here's the link to watch the meeting:

http://www.hhs.gov/advcomcfs/access.html

HHS said:
Agenda

CFSAC 2016 Webinar Meeting

12:00 p.m. to 5:00 p.m. (ET)

May 17, 2016


12:00 p.m.
Call to Order
Roll Call
Webinar Logistics
Susan M. Levine, M.D.
Chair
Nancy C. Lee, M.D, D.F.O.
Deputy Assistant Secretary for Health-Women’s Health


12:15
Opening Remarks
Susan M. Levine, M.D.
Chair


12:25
Agency Updates
CDC, CMS, AHRQ, SSA,
Committee


1:10
Updates from Liaison Organizations
Carol Head, SolveCFS
Steve Krafchick, IACFSME


1:30
Public Comment
Public

2:00
Report from the ME/CFS Centers of Excellence Working Group
Gary E. Kaplan, D.O.
Working Group Chair


3:00
Break

3:15
Committee Discussions and Recommendations
Susan M. Levine, M.D.
Committee


4:50
Plans for Day 2
Susan M. Levine, M.D.
Chair


5:00 p.m.
Adjourn


Agenda

CFSAC 2016 Webinar Meeting

12:00 p.m. to 5:00 p.m. (ET)

May 18, 2016

12:00 p.m.
Call to Order
Roll Call
Webinar Logistics
Susan M. Levine, M.D.
Chair
Nancy C. Lee, M.D., D.F.O.


12:10
Opening Remarks
Susan M. Levine, M.D.
Chair


12:20
Agency Updates
NIH, FDA, HRSA,
Committee


1:15
Public Comment
Public

1:45
Report from the IOM/P2P Working Group
Donna Pearson
Working Group Chair


2:30
Committee Discussions and Recommendations
Susan M. Levine, M.D.
Committee


3:15
Break

3:30
Committee Discussions – Future CFSAC Working Groups and Activities
Susan M. Levine, M.D.
Chair


4:45
Wrap Up
Susan M. Levine, M.D.
Chair


5:00 p.m.
Adjourn

________________________________________________________

The CFSAC Support Team

Email: cfsac@hhs.gov

Website: http://www.hhs.gov/advcomcfs/index.html
 
Last edited:
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I am a bit confused, As a community I don't see even a topic on the disease name and I see some people adapting SEID. so shouldn't this be discussed / decided?
 

Kati

Patient in training
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I am a bit confused, As a community I don't see even a topic on the disease name and I see some people adapting SEID. so shouldn't this be discussed / decided?
Uhm well you know, CFSAC has no power. They can only advise the secretary and in the past decade, that didn't go too well. There might be chances that the #Millionsmissing protest might be more helpful but who knows? :rolleyes:
 

Sasha

Fine, thank you
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Four hours to go! Very much looking forward to hearing the agency updates (for once!) after all that's happened with the NIH and the intramural study in the past few months.
 

shannah

Senior Member
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I just noticed it's two half days this time. From 2 days to 1 1/2 days and now essentially down to 1 day. Keeps getting shorter and shorter doesn't it?
 

Sasha

Fine, thank you
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Bump!

Starts in an hour.

Don't forget that if you're going to watch it on your computer you need to install that programme first.
 

Sasha

Fine, thank you
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This starts in ten minutes.

Slightly confused about whether I've managed to upload the software correctly and am actually looking at the right hting, but I suppose I'll find out...