Madison Sunnquist, Graduate Student, Center for Community Research
Institution: DePaul University, USA
Faculty Advisor: Leonard Jason, Ph.D.
Research Team: Laura Nicholson, B.A., Diana Ohanian, M.A.
We are conducting a research study because we are trying to learn more about health care access and quality of care for individuals with myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS).
We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older.
If you agree to be in this study, you will be asked to complete a survey.
The survey will include questions about your health care experiences related to your ME or CFS.
We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, work status, and residential region.
The full survey can be completed online. If there is a question you do not want to answer, you may skip it.
This study will take about 15 to 20 minutes of your time. Research data collected from you will be anonymous.
Your participation is voluntary, which means you can choose not to participate. There will be no negative consequences if you decide not to participate or change your mind later after you begin the study. You can exit the survey at any time.
Once you enter your responses, we will be unable to remove your data later from the study because all data is anonymous and we will not know which data belongs to you. At any time prior to submitting your survey responses, you can select "reset" below any question to remove your response to that question from the study.
You must be age 18 or older to be in this study. This study is not approved for the enrollment of people under the age of 18.
If you have questions, concerns, or complaints about this study or you want to get additional information or provide input about this research, please contact Madison Sunnquist at 773-325-1164 or by email at
msunnqui@depaul.edu.
If you have questions about your rights as a research subject you may contact Susan Loess-Perez, DePaul University's Director of Research Compliance, in the Office of Research Services at 312-362-7593 or by email at
sloesspe@depaul.edu. You may also contact DePaul's Office of Research Services if:
• Your questions, concerns, or complaints are not being answered by the research team.
• You cannot reach the research team.
• You want to talk to someone besides the research team.