P.A.N.D.O.R.A. response to ICC
International ME Consensus Criteria - A message from the Founder of PANDORA
by P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. on Wednesday, July 27, 2011 at 6:56pm
Dear Friends,
As we have been asked about the recent International ME Consensus Criteria publication PANDORA would like to share the following:
We are in the process of reading and evaluating this breakthrough publication in the ME/CFS and in the NeuroEndocrineImmune diseases (NEIDs) scientific community.
We have been informed that there will be a session devoted to case definitions at the upcoming IACFS/ME Conference in Ottawa in September, hosted by the National ME/FM Action Network (Canada), where many of the scientists involved in the new definition will be attending. We look forward to learning more and participating in the overall discussion. We expect that by then, a greater consensus and understanding of such proposal will be shared.
Dr. Bruce Carruthers is one of the invited speakers and will be speaking on the subject of the new, international case definition. Drs. Leonard Jason and Beth Unger are also invited speakers. The session will be chaired by Dr. Kenneth J. Friedman. Subsequent to the presentations, there will be an opportunity for discussion. For those not in attendance, a DVD of the conference will be available for purchase.
We believe this publication is a historical one. It clearly sends a message to health government agencies in the U.S. and across the globe that it is time for a change and the time in now.
In Good Health and In Beauty,
Marly Silverman
Founder
P.A.N.D.O.R.A.
www.p-a-n-d-o-r-a.org