Hi, I'm Errol, recovering from mega jaw cavitation and root canal surgery. Have read Ian's lengthy posting stretching over 5 years with so much interest.
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Totally amazing. I have a list of various reference sites which I will share on request.
Thanks for posting your story, which may well help others in a similar situation.
Do you have any weblinks detailing sonar scanning, and it's ability to detect necrotic cavitations? Is there a list of dentists or clinics that posses such sonar scanners?
I understand that the terms osteomyelitis (inflammation / infection in a bone) and osteonecrosis (death of tissue due to loss of blood supply) are used to describe the processes going on in these dental jaw bone cavitation infections.
Presumably you did not mean to write "anti sonar scanning".
Thanks for your great report, and congratulations on your getting to the core of many of your health problems. Like Hip, I too am interested in some information on how to contact qualified dentists/oral surgeons and/or clinics that do this kind of specialized diagnostics and surgery. My understanding is they're few and far between.
I'd also be interested in what your surgeries cost, and whether or not the expense might be prohibitive for many who've lost their source of income--like myself and many others on this board.
You may be interested in a thread I started several years ago entitled:
Diagnosis Unknown - Story of CFS Recovery
It's about a book written by a man who spent years trying to track down the cause of his wife's CFS-like poor health--finally discovering oral infections were the cause. It's quite a fascinating read, with the entire book being available online for anybody to read.
Please keep us updated!
Regarding where to get this treatment - the surgeon has asked that I request your email address and he will contact you direct. I am not sure how this website operates, but hopefully we can get in email contact to assist you.
But most people are walking around with chronic infections in their jaws.
A lot of cavitations will show up on x-ray. If you can still see the outline of where a tooth was extracted, and it was done years previously, its a cavitation.
I never actually had facial pain.
Did you have any of these, like say the sour, bitter taste in the mouth?Deep bone pain and pressure, which may be constant but vary in intensity
A sour, bitter taste, which often causes gagging and bad breath
Sharp, shooting pain from the jaws, which eludes doctor's diagnostic attempts
Chronic maxillary sinusitis, congestion and pain
Do you know of any other ME/CFS patients who, like yourself, had major improvements in their ME/CFS symptoms after surgery to clear out a jaw bone cavitation infection? Are you still in more-or-less in full remission from ME/CFS after your jaw bone cavitation surgery? I understand from your thread that you were completely housebound with ME/CFS prior to your surgery, and experienced full remission from ME/CFS after the surgery.
And yes other people who have gone through the same as me have had some pretty major health improvements.
OK Hip no problem, I'm having a look at the ME/CFS Roadmap For Testing And Treatment site as we speak and I'll addin what I can.@ERROL_FARNHAMSURREY
Thanks Errol. Do you think that the sonar device is the Cavitat scanner described on @Ian's website?
Thanks, but what I had in mind was putting some weblinks to dentists in my ME/CFS Roadmap For Testing And
@ERROL_FARNHAMSURREY, you might consider asking the moderators to move your thread to the "General Treatments" section of this forum, where it may get more attention. Threads posted in the "Introduce Yourself" section, as this thread currently is, do not get indexed by Google, so it makes it harder for others to find it. Unless of course you don't want this thread indexed. To contact the moderators, just press the "Report" button under your post.
Treatment document, which includes a section on ME/CFS caused by jaw bone infections.
I am not actually interested in this treatment for myself, as I don't appear to have any such jaw bone infections.
The Scanner used is the KODAK 8000 Digital Panoramic System. The surgeon previously used the Cavitat Generation 4 system, which he showed me - it looks like a very very old PC, with an old style stiff disk reader.
Diagnosis is hindered by the fact that X-rays (even digital and/or panoramic) often do not detect dental osteomyelitis.
Hip, sincerely bow to your knowledge in these matters.