I don't disagree that the amount offered in this grant is negligible but while we may continue the fight to get respect and by consequence proper funding let's not throw away the crumb. It's been the case occasionally that amazing things have been done on a shoestring when others have thrown huge vats of money to no avail.
I agree but this condition demands serious resources
Obfuscation has been the name of the game. Promises then half measures to keep us off their backs. If we fall for it then we lose, not the government.
Just replicating a small but important study could be useful while we keep on advocating.
I wouldn't, when your operating on a shoestring spinning your wheels hurts more then it helps
Also, I think that our arguments should highlight what might be of benefit to the granters of funding -- that is to say what might they get in return. ME research has the potential to open up possibilities for new technologies that can be applied in a wide variety of ways and what is learned might have some relevance to other illnesses for which there is little understanding. This potential should be mentioned as part of advocating for research.
Unless they don't know what they are doing they will see through this and label us quacks. That is counter productive.
As i said earlier of course you get more flies with honey then vinegar but being diplomatic and smart and determined is what we need to achieve progress, either that or a disease mechanism thats measurable. But how do you get the money to do the research that gives us the mechanism?