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Liz, i believe you were present at Dr Patrick's presentation. He's surrounded himself by many, many scientists and specialsits such as infectious disease, rheumatology, mitochondria and more. This is what is needed for ME and FM. Science. Working from bench to bedside.
If you take the HIV model, give all the support groups, CBT and special diets you want it will not fix viral loads and CD-4 levels. Medicine will. dr bested chose to hire a chinese medicine dr, a naturopath and have a CBT program for patients. OMG, who would even suspect she is a hematologist/pathologist?
And as an aside, if you listen to the Pain BC Radio show, she warns a patient about checking out where her sources were for believing a patient visit at the clinic would last 4 hours. i truly feel she was thinking of my when she said "check your sources". But then I went and checked out what the website said. And I took a screen shot of it. OMG, it's not Kati or other patients that said that, it was her own website.
i emailed her the same day and a change was done without changing the date update at the bottom and she never replied to me. I am not the enemy. i am a patient that needs care, medical care.
And i cannot comment about other people's experience at the clinic, since I do not have permission that is why i am only talking about my own.