Here is their comment today on Facebook:
" Privacy tip: When submitting personally identifiable health information (diagnosis, medications, etc. linked to your name and contact info), make sure the site is secure (encrypted) and has a privacy policy about how such information will be used, stored and protected"
This in my opinion was directly aimed at WPI and their online questionaire. I don't want to open a can of worm here, but why don't they deal with this issue with WPI directly instead of puting it out there on Facebook?
WPI is not for profit-
WPI deserve respect after the recent discovery
WPI is privately funded- CAA is publicly funded
WPI wants PWC to get better-
I commented on Facebook discussion that the more people getting out of the closet on how they have been treated during the course of their disease, the better it is for all of us to uncover lies, betrayals and horrible treatments. The world has to know what has been going on in the last decades. This is not about privacy, it's about going public. It's about finding a cure.
" Privacy tip: When submitting personally identifiable health information (diagnosis, medications, etc. linked to your name and contact info), make sure the site is secure (encrypted) and has a privacy policy about how such information will be used, stored and protected"
This in my opinion was directly aimed at WPI and their online questionaire. I don't want to open a can of worm here, but why don't they deal with this issue with WPI directly instead of puting it out there on Facebook?
WPI is not for profit-
WPI deserve respect after the recent discovery
WPI is privately funded- CAA is publicly funded
WPI wants PWC to get better-
I commented on Facebook discussion that the more people getting out of the closet on how they have been treated during the course of their disease, the better it is for all of us to uncover lies, betrayals and horrible treatments. The world has to know what has been going on in the last decades. This is not about privacy, it's about going public. It's about finding a cure.