- Messages
- 74
Dear Everyone,
We all know that May is International ME/CFS Awareness Month so I thought of an idea to raise awareness without a lot of exertion on our parts.
Cort mentioned in another thread that despite inviting thousands of patients a meeting of CFSAC only about 50 showed up! One of the reasons for this low participation in advocacy events is quite obvious we are just too sick!
However anyone reading this uses the internet at least some of the time...
...Id bet that most of us either have:
A.) A Facebook
B.) A Myspace
C.) A Twitter
D.) A Blog
E.) Some other Forum(s) where we post on topics not related to ME/CFS.
Some of the Techi people may have more than one or even all the above.
So I suggest the following: for the month of May lets all change our avatars to a blue-ribbon design and link them to a description of ME/CFS or a personal story of someone who has(had) it!
I have attached a sample blue-ribbon design only a sample, please someone more creative do it better!
How do you link your avatar to a webpage? Well you can only on certain types of blogs or forums. In most cases you will have to put the link and a short description in your Signature (if a group or a forum) or in a comment on your avatar (if Facebook).
Here are a few things I thought of on my own that I thought you might want to link your avatar to:
Alison Hunters Speech About M.E./CFS.
(URL="http://www.ahmf.org/forgetmenot.html"]Alison Hunters Speech About M.E./CFS[/URL )
Sophia Mirzas Story with M.E.
(URL="http://www.sophiaandme.org.uk/sophia%20&%20m.e.%20her%20story.html"]Sophia Mirzas Story with M.E.[/URL)
About M.E. from Blue Ribbon for the Awareness of ME.
(URL="http://www.brame.org/productssimple.html"]About M.E. from Blue Ribbon for the Awareness of ME[/URL)
A Sudden IllnessBy Laura Hillenbrand.
(URL="http://www.cfids-cab.org/MESA/Hillenbrand.html"]A Sudden IllnessBy Laura Hillenbrand[/URL)
Blue Ribbon Campaign for ME/CFS.
(URL=" http://www.blueribboncampaignforme.org/Learn_about_ME_CFS.html"] Blue Ribbon Campaign for ME/CFS[/URL)
Im sure there are many more touching stories and/or information pages which could serve as an easy introduction to this illness! These are just those I could think of off hand. For this thread please post them with the links in parentheses (instead of brackets) so the link will be viewable.
Additionally on this huge board there have to be a few people with artistic ability who can design a really gorgeous blue-ribbon avatar! Please post those here also, mine was only a sampleI stink at most art-type things!
Its not May yet and this is only a rough draft so to speak. So lastly please post comments on how this idea could be improved! :Retro wink:
We all know that May is International ME/CFS Awareness Month so I thought of an idea to raise awareness without a lot of exertion on our parts.
Cort mentioned in another thread that despite inviting thousands of patients a meeting of CFSAC only about 50 showed up! One of the reasons for this low participation in advocacy events is quite obvious we are just too sick!
However anyone reading this uses the internet at least some of the time...
...Id bet that most of us either have:
A.) A Facebook
B.) A Myspace
C.) A Twitter
D.) A Blog
E.) Some other Forum(s) where we post on topics not related to ME/CFS.
Some of the Techi people may have more than one or even all the above.
So I suggest the following: for the month of May lets all change our avatars to a blue-ribbon design and link them to a description of ME/CFS or a personal story of someone who has(had) it!
I have attached a sample blue-ribbon design only a sample, please someone more creative do it better!
How do you link your avatar to a webpage? Well you can only on certain types of blogs or forums. In most cases you will have to put the link and a short description in your Signature (if a group or a forum) or in a comment on your avatar (if Facebook).
Here are a few things I thought of on my own that I thought you might want to link your avatar to:
Alison Hunters Speech About M.E./CFS.
(URL="http://www.ahmf.org/forgetmenot.html"]Alison Hunters Speech About M.E./CFS[/URL )
Sophia Mirzas Story with M.E.
(URL="http://www.sophiaandme.org.uk/sophia%20&%20m.e.%20her%20story.html"]Sophia Mirzas Story with M.E.[/URL)
About M.E. from Blue Ribbon for the Awareness of ME.
(URL="http://www.brame.org/productssimple.html"]About M.E. from Blue Ribbon for the Awareness of ME[/URL)
A Sudden IllnessBy Laura Hillenbrand.
(URL="http://www.cfids-cab.org/MESA/Hillenbrand.html"]A Sudden IllnessBy Laura Hillenbrand[/URL)
Blue Ribbon Campaign for ME/CFS.
(URL=" http://www.blueribboncampaignforme.org/Learn_about_ME_CFS.html"] Blue Ribbon Campaign for ME/CFS[/URL)
Im sure there are many more touching stories and/or information pages which could serve as an easy introduction to this illness! These are just those I could think of off hand. For this thread please post them with the links in parentheses (instead of brackets) so the link will be viewable.
Additionally on this huge board there have to be a few people with artistic ability who can design a really gorgeous blue-ribbon avatar! Please post those here also, mine was only a sampleI stink at most art-type things!
Its not May yet and this is only a rough draft so to speak. So lastly please post comments on how this idea could be improved! :Retro wink:
