Blood work work up for CFIDS

[glenp]

negligence

Because of the negligence of my previous doctor a kind obstetrician at a walk in clinic took me on as a patient, he has given me every test that I have asked for. When I had the echo gram I had a bubble injection which showed the abnormality, so I do think that it is important to get the injection with it.

 

[aquariusgirl]

cold taste of tears

have you been able to get these tests on the NHS?

 

[Kati]

Aquarius girl, what is NHS- I supposd it's national health security? or Natural History Society? I supposed it's a US term-

 

[cold_taste_of_tears]

NHS = National Health Service.

The 'free' socialised medical service in the UK - payed for by taxes.

 

[Kati]

Just saw my dr today, and got her to do ANA, rheumatoid factor, cholesterol, cortisol, glucose tolerance test, and I was out of luck for natural killer cells- it is out of her authority range- forgot to ask about CD$- CD8.

I also got my functional assessment test results back which I posted here:
http://cfsknowledgecenter.ning.com/profiles/blogs/functional-assessment-ressults

and open to suggestions. The disability insurance company declared me medically able to do a rehab program based on this functional assessment- regardless to the fact that I have not seen a specialist as of yet (rheumy) and that I spend about 22 hours in bed at the moment.

 

[starryeyes]

Sorry they're putting you through that Kati. Your link doesn't work btw.

Have you kept a journal of all of your symptoms that shows how it affects your ability to perform chores and daily tasks?

Also, have you read the Disability articles at ProHealth? They're really good and I think they can help you. Another good site is DisabilitySecrets.com and there is a Disability section here at PR too.

Keep fighting and you will most likely win eventually.

tee

 

[Kati]

Teejkay, thanks for encouragements. Click the link and click blogs, you will find me in the list. 2 parts to the story.

And will review the prohealth articles tomorrow- it's time to tuck myslef to bed and close my eyes...

 

[andreamarie]

An abnormal ANA is often an indication of Sjogren's. There are further tests but be aware they are only 50% accurate. Sjogren's does not mean you don't have CFS but the standard treatment is Plaquenil, an antimalarial med.

 

[Kati]

Andreamarie, ANA can be very nonspecific, and a positive ANA doesn't necessarily mean pathology. Also + ANA if pathologic shares many possibility in terms of diseases, like Sjogren, RA, lupus, etc... mostly rheumatologic or autoimmune diseases. I have been checked for all these and specific antibodies are non conclusive.