bertiedog
Senior Member
- Messages
- 1,746
- Location
- South East England, UK
I suppose because of Covid and the fact I have been getting more and more negative symptoms I bought a temperature gadget that takes your temperature 5 cm from your forehead. It has been very enlightening.
When I am resting with my feet on the sofa my temperature is between 36.3-36.5 for the most part. However whenever I have done some cleaning and can feel some negative effects it drops to 35.1. This has happened every time I have checked and especially after walking my Beagle for 25 minutes maximum. That 25 minutes includes a sit down of at least 5 minutes.
Today I felt a bit better having raised my thyroid medication a bit due to the symptoms I have been experiencing and I was very surprised to see that this time though I didn't feel too bad at all after my walk temperature had dropped to 34.9.
Yet again after a short rest and a top up with my oxygen concentrator it is back up to 36.4.
I was wondering if everybody has checked their temperature in this way and sees a similar patten?I should add that I do have hypothyroidism but thought I was doing ok on 1 1/2 grains NDT daily plus 25 mcg thyroxine. I have been on this dose the whole of this year after having to drop my dose from 2 grains at the beginning of the year when I had some really nasty viruses that caused huge heart and OI issues making me intolerant of any thyroid medication for a short time. My blood tests looked find in February so I stuck to the 1 1/2 grains plus the 25 mcg thyroxine.
Symptoms have been creeping up since May when I started getting a bad lower back and since then I have started having frequent short lived viral attacks, GI symptoms, intractable migraines and more recently weight gain. plus huge exhaustion.
The final symptoms that helped me to sort out what is probably going on was arthritic pain in my hands and feet which was so bad some days I wondered for how much longer I was going to be able to walk. I also looked back at my Kardia data and could see my heart rate had dropped down to 62 when checked whereas it used to be around 72 at least.
Because we have had an endless hot summer in south east England I have rarely felt cold, otherwise I might have picked up a lot earlier what was going on.
I realise that things are going to be unstable for some time because it will take a while for the small extra increase of NDT to work but I was surprised by the temperature variation with any exercise or exertion and wondered how common this is in ME/CFS.
Pam
When I am resting with my feet on the sofa my temperature is between 36.3-36.5 for the most part. However whenever I have done some cleaning and can feel some negative effects it drops to 35.1. This has happened every time I have checked and especially after walking my Beagle for 25 minutes maximum. That 25 minutes includes a sit down of at least 5 minutes.
Today I felt a bit better having raised my thyroid medication a bit due to the symptoms I have been experiencing and I was very surprised to see that this time though I didn't feel too bad at all after my walk temperature had dropped to 34.9.
Yet again after a short rest and a top up with my oxygen concentrator it is back up to 36.4.
I was wondering if everybody has checked their temperature in this way and sees a similar patten?I should add that I do have hypothyroidism but thought I was doing ok on 1 1/2 grains NDT daily plus 25 mcg thyroxine. I have been on this dose the whole of this year after having to drop my dose from 2 grains at the beginning of the year when I had some really nasty viruses that caused huge heart and OI issues making me intolerant of any thyroid medication for a short time. My blood tests looked find in February so I stuck to the 1 1/2 grains plus the 25 mcg thyroxine.
Symptoms have been creeping up since May when I started getting a bad lower back and since then I have started having frequent short lived viral attacks, GI symptoms, intractable migraines and more recently weight gain. plus huge exhaustion.
The final symptoms that helped me to sort out what is probably going on was arthritic pain in my hands and feet which was so bad some days I wondered for how much longer I was going to be able to walk. I also looked back at my Kardia data and could see my heart rate had dropped down to 62 when checked whereas it used to be around 72 at least.
Because we have had an endless hot summer in south east England I have rarely felt cold, otherwise I might have picked up a lot earlier what was going on.
I realise that things are going to be unstable for some time because it will take a while for the small extra increase of NDT to work but I was surprised by the temperature variation with any exercise or exertion and wondered how common this is in ME/CFS.
Pam