Hi, my name is Jakub I am a 21-year-old male Studying Mathematics in Uk. I used to be very active and was/still health orientated so I rarely drank alcohol/never took drugs or smoke. I used to be able to run a marathon and I was a Gym lover. In late 2019 my strange issues began and here's the breakdown of my issues.
Here is a Brief Story of my problems:
I began consistently losing energy which was very apparent while I went outside or went to the gym. I didn't think much of it and I started resting more and also eating more while still eating healthy foods. (non-vegan). Then came very bad constipation that recurred for months and I tried laxatives, very expensive probiotics, and elimination diets including the carnivore diet(currently I eat carbs again). while the constipation issues persisted my energy began falling more and more and at this point, I developed pretty bad insomnia(not sleeping for 2 days straight no matter what I did.
I went to my GP as it's obviously very concerning and I got prescribed omeprazole for the reflux and got told it all in my head (which I believed at the time and hoped it will go away).as weeks went past I began noticing more issues like weird heart issues and the delayed stomach emptying became very apparent as even after eating bread, it stayed in my stomach for hours and hours and came up after drinking water. I did some research and the closes thing I could find is named "gastroparesis" which I went and told my GP about but they refused to investigate further and I got prescribed antidepressants. I have since quit all medication as it's not helping even the slightest and I feel helpless. I will be traveling to a different country to spend thousands of British pounds on private blood tests and doctors to hopefully figure out what it could be.
current Symptoms :
insomnia characterized by random waking up/not enough sleep and when I sleep 6/7h it's unrefreshing.
Slow gastric emptying
slow /hard heartbeats - sinus bradycardia type of symptoms but not confirmed yet. this also causes headaches, slight confusion, and difficulty breathing.
floating stools and poorly digested food matter(even non-fiber foods)
very weak mentally as well as physically so the best I can do I go for a walk with breaks, I lay in bed a lot and stay at home most of the days in the week.
depression ( most likely as a result of symptoms but the source of those issues may also play a role in my depression).
calf twitching especially after I got for a walk.
weird chemical breath after I do some movement like go for walk and walk indoors, I notice it.
Blood work done(all normal and in range for US/UK and European ranges):
Homocysteine
b12
iron
d3
zinc
copper
CRP
ANA
all thyroid biomarkers (done 3 times privately)
H.pylori
Candida
parasites
elastase
calprotectin
zonulin
electrolytes including calcium
parathyroid
basic urine markers like nitrates and ph
GFR
creatinine
Cortisol
DHEA
Gastric auto-antibodies
testosterone - on the low side
serum magnesium
genetic testing
Heavy metals in hair (very expensive test)-very low potassium but my diet is rich in potassium? However not sure how hair potassium correlated to actual potassium in the body as the serum is normal.
I have learned a lot of medicine over the year and I'm still searching in despair as I feel ruined.
my theory:
Need to check for:
Pheochromocytoma
maybe its something to do with noradrenaline
vagus issues?
I would like to thank you for reading this and any ideas are welcome and considered as the more ideas the better; Ideas relating to possible testing to do or what it could be?
thank you.
Here is a Brief Story of my problems:
I began consistently losing energy which was very apparent while I went outside or went to the gym. I didn't think much of it and I started resting more and also eating more while still eating healthy foods. (non-vegan). Then came very bad constipation that recurred for months and I tried laxatives, very expensive probiotics, and elimination diets including the carnivore diet(currently I eat carbs again). while the constipation issues persisted my energy began falling more and more and at this point, I developed pretty bad insomnia(not sleeping for 2 days straight no matter what I did.
I went to my GP as it's obviously very concerning and I got prescribed omeprazole for the reflux and got told it all in my head (which I believed at the time and hoped it will go away).as weeks went past I began noticing more issues like weird heart issues and the delayed stomach emptying became very apparent as even after eating bread, it stayed in my stomach for hours and hours and came up after drinking water. I did some research and the closes thing I could find is named "gastroparesis" which I went and told my GP about but they refused to investigate further and I got prescribed antidepressants. I have since quit all medication as it's not helping even the slightest and I feel helpless. I will be traveling to a different country to spend thousands of British pounds on private blood tests and doctors to hopefully figure out what it could be.
current Symptoms :
insomnia characterized by random waking up/not enough sleep and when I sleep 6/7h it's unrefreshing.
Slow gastric emptying
slow /hard heartbeats - sinus bradycardia type of symptoms but not confirmed yet. this also causes headaches, slight confusion, and difficulty breathing.
floating stools and poorly digested food matter(even non-fiber foods)
very weak mentally as well as physically so the best I can do I go for a walk with breaks, I lay in bed a lot and stay at home most of the days in the week.
depression ( most likely as a result of symptoms but the source of those issues may also play a role in my depression).
calf twitching especially after I got for a walk.
weird chemical breath after I do some movement like go for walk and walk indoors, I notice it.
Blood work done(all normal and in range for US/UK and European ranges):
Homocysteine
b12
iron
d3
zinc
copper
CRP
ANA
all thyroid biomarkers (done 3 times privately)
H.pylori
Candida
parasites
elastase
calprotectin
zonulin
electrolytes including calcium
parathyroid
basic urine markers like nitrates and ph
GFR
creatinine
Cortisol
DHEA
Gastric auto-antibodies
testosterone - on the low side
serum magnesium
genetic testing
Heavy metals in hair (very expensive test)-very low potassium but my diet is rich in potassium? However not sure how hair potassium correlated to actual potassium in the body as the serum is normal.
I have learned a lot of medicine over the year and I'm still searching in despair as I feel ruined.
my theory:
Need to check for:
Pheochromocytoma
maybe its something to do with noradrenaline
vagus issues?
I would like to thank you for reading this and any ideas are welcome and considered as the more ideas the better; Ideas relating to possible testing to do or what it could be?
thank you.