I also want to know if there is anything else they should be testing aside from POTS?
Here is a list of some of the more common autonomic disorders: https://www.dinet.org/info/dysautonomia-disorders-diagnostics-info/dysautonomia-overview-r121/
There is a suite of tests for autonomic dysfunction, though the tilt table is an excellent start. It will not, however, cover all possible manifestations of dysautonomia. I learned not too long ago that the TTT is great for diagnosing POTS if it lasts for 15 minutes. That is enough. But for Neurally Mediated Syncope, you need to be tilted for 40-45 minutes. Thus, my NMS was overlooked because I had an abnormal tilt at 5 minutes --thus I got the POTS diagnosis and the test was over. A later and longer TTT led to a clear diagnosis of NMS as well as POTS.
Here is one list of possible tests: https://www.dinet.org/info/dysauton...info/autonomic-testing-for-dysautonomia-r206/
Having finally found a doctor with expertise in dysautonomia, I have had: tilt table, valsava, deep breathing, catacholamine. I am scheduled for a sweat test in a couple of weeks and after that perhaps a skin biopsy for SFN.
I am concerned the results may not give a true reflection of what is going on if I'm pretty much stable.
Do you know about the poor man's TTT or the NASA lean test? Very simple, can be done at home in 15 minutes with a blood pressure cuff and a timer/phone. I used it fairly regularly to see when my heart rate was up and how high and how long it took, along with tracking upright BP. It gave me some confidence that I had enough abnormality there that it would likely show up in a tilt. You might want to try it for your own information.
Here are directions in case you haven't run across it: https://potscare.com/wp-content/uploads/PMTTT-Instructions.pdf
I measure every two minutes upon standing, though, not just the two times these directions suggest.
One more thing--for most of us, POTS symptoms are pronounced in the morning. So I know that doctors who understand it schedule TTT for as early as possible.