ME/CFS Diagnostic Criteria in Australia
"Chronic fatigue syndrome - Clinical practice guidlines 1997" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians http://www.tnq-support-group.net/cfs_australian_2002-guidelines-overview.html(html) http://www.myalgic-encephalomyelitis.com/cfs_australian_2002-guidelines-overview.html(html) pdf links on either site.
"Chronic fatigue syndrome - Clinical practice guidlines 2002" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians http://www.mja.com.au/public/guides/cfs/cfs2.html(html) http://www.mja.com.au/public/guides/cfs/cfs2.pdf(pdf)
The ME/CFS guidelines, Management Guidelines for General Practioners (sponsored by the Sth Aust government and others) 2004 http://www.oiresource.com/pdf/mecfs.pdf These guidelines recommend the 2003 Canadian Clinical Criteria.
From 2005 the "Overview of a Clinical Case Definition and Guidelines for Medical Practioners, An Overview of the Canadian Consensus Document"
Authored by Bruce M. Carruthers and Marjorie I. van de Sande, came into use (Sth Australia). The inside of the front cover page of the booklet (capitals and all) states:
Australian ME/CFS Epidemics
1949-1951 800 (another source said 600) people in Adelaide (Goolwa?? outbreak or was this separate outbreak of the 1950s?), Sth Australia, became ill with what was known as Epidemic Neuromyasthenia (For more info on this outbreak see "Australian ME/CFS Research" section. Pellew RAA investigated)
1955 Perth, Western Australia. Described as "virus epidemic in recurrent waves"
1957 Brighton, Sth Australia. Outbreak described as "Coxsackie, Echo Virus meningitis and mylagic encephalomyelitis", "Epidemic myalgic encephalomyelitis," and "Benign myalgic encephalomyelitis."
ME/CFS in Parliament
On XMRV testing and medicare http://parlinfo.aph.gov.au/parlInfo...;query=xmrv;querytype=;rec=2;resCount=Default
ME/CFS Funding and Government ME/CFS funding
Since 1998 Alison Hunter Memorial Foundation has made quite an impact to the ME/CFS situation in Australia and has helped fund ME/CFS studies, along with holding some very large ME/CFS gatherings where well known ME experts have been brought to help educate our doctors and talk to the ME/CFS community. The goal of this independant organisation is to "to advance scientific knowledge and medical care." http://www.ahmf.org/aboutus.html
The Judith Jane Mason and Harold Stannett Williams Memorial Foundation (Established in 2003, funds Aust. ME/CFS and Alzheimers research studies..60% of the money goes towards the ME/CFS research) http://docs.google.com/viewer?a=v&q...NGyRVK&sig=AHIEtbSoSAuyM8RB2CUWXFEY--j_ILxIBw
In 2004 the ME/CFS Society of Sth Australia, set up a research fund for ME/CFS research which was going towards funding the Adelaide Chronic Fatigue Syndrome Research Group.. a group of ME/CFS experts who are also in practice. (Im doubtful that research fund now exists? as funding for the 2011 study of this group was funded by John T. Reid Charitable Trusts, supported by the Alison Hunter Memorial Foundation).
Australian ME/CFS Research
"Clinical Description of a disease resembling poliomyelitis seen in Adelaide", (Pellew RAA) 1949-1951, Med J Australia, 1, 944
Epidemic Neuromyasthenia (ENM) "Further investigations on a disease resembling poliomyelitis in Australia" (1955), Adelaide, Pellew RAA, Miles JAR, Med J Aust. http://www.investinme.org/InfoCentre Epidemics.htm http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425322/pdf/postmedj00263-0008.pdf
Double-blind, placebo-controlled trial of intravenous immunoglobulin therapy (1990) http://www.amjmed.com/article/0002-9343(90)90173-B/abstract
Intravenous immunoglobulin (1997) www.amjmed.com/article/S0002-9343(97)90045-0/abstract
Cell-mediated Immunity (1992) Division of Psychiatry, Prince Henry Hospital, NSW http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1554231/pdf/clinexpimmunol00051-0078.pdf
Cytokine Production response to exercise (1994) Depart. of Infectious Diseases, Prince Henry Hospital, NSW http://cid.oxfordjournals.org/content/18/Supplement_1/S142.abstract
Longitudinal study of outcome of CFS (1994) http://www.bmj.com/content/308/6931/756.full?sid=23f733bb-f6e6-4990-bc1e-d48e2bb46919
Lactic acid (1995) The Adelaide CFS Research Group, Adelaide University, http://sacfs.asn.au/medical/adelaide_uni_research_1.htm
Maximal Oxygen uptake and lactate mechansim are normal (2002) Dept. of Physiology, University of Adelaide http://digital.library.adelaide.edu...mode=full&submit_simple=Show+full+item+record
Lactate Threshold during exercise (2004) University of Adelaide http://sacfs.asn.au/medical/adelaide_uni_research_2.htm
Molecular basis to CFS (1996) http://www.sciencedirect.com/scienc...d270a7463d1014127b2dc1e15cc6a22d&jchunk=57#57 http://www.orient-explorer.com/auiac/Prof Tim Roberts.pdf
Symptom expression & Urinary Metabolites (1996) Uni of Sydney, Uni of Newcastle, John Hunter Hosp http://www.sciencedirect.com/scienc...7361dc68f4568aac86729947fccdcf17&searchtype=a
Cognitive deficits (1997) Inflammation Research Unit, School of Pathology, University of New South Wales http://bjp.rcpsych.org/cgi/content/...na&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT
Cognitive functioning in CFS a meta analyses (2010) University of Adelaide, http://digital.library.adelaide.edu.au/dspace/handle/2440/61121
Changes in plasma lipid homeostasis (1999) Uni of Newcastle, Uni of Sydney, John Hunter Hosp. http://cat.inist.fr/?aModele=afficheN&cpsidt=1220520
Plasma fatty acids and sterols in sudden and gradual-onset CFS (2000), Uni of Newcastle http://www.deepdyve.com/lp/taylor-f...-and-sterols-in-sudden-and-gradual-lTmpQYGIgC
Dev. of lab-based tests in chronic pain & fatigue, Essential fatty acids & cholesterol, JOURNAL OF CFS, 7, NO. 2 59-62 (2000) Uni of Newcastle
Biochemical & Microbiological Abnormalities: The Dev of lab based tests and possible role of toxic chemicals (1999) Uni of Newcastle http://informahealthcare.com/doi/ab...onic+fatigue+syndrome%27%29&searchHistoryKey=
Biochemistry of Chronic Pain and Fatigue (2000) University of Newcastle, Nth Shore Hosp, Westmead Hosp. http://www.co-cure.org/infor20.htm
Erythrocyte morphology in rheumatoid arthritis & CFS, JOURNAL OF CHRONIC FATIGUE SYNDROME, 6, NO. 1 23-35 (2000)
Blood parameters indicative of Oxidative Stress associated with symptom expression of CFS (2000) University of Newcastle http://www.ingentaconnect.com/content/maney/rer/2000/00000005/00000001/art00009
Association between oxidative damage markers & temporomandibular dysfunction symptoms in CFS (2004) University of Newcastle http://ogma.newcastle.edu.au:8080/vital/access/manager/Repository/uon:1520
Free radicals in CFS: cause or effect? (2000) University of Newcastle http://www.ncbi.nlm.nih.gov/pubmed/10939298
Erythrocyte Oxidative Damage (2006) Charles Sturt University, NSW http://www.cfids-cab.org/cfs-inform/Hypotheses/richards.etal07.pdf
Moclobemide trial (2000) Uni of NSW, St George Hosp & Royal North Shore Hosp www.psychiatrist.com/abstracts/abstracts.asp?abstract=200009/090003.htm
Development of laboratory-based tests in chronic pain & fatigue. 1. Muscle catabolism and coagulase negative staphylococci which produce membrane damaging toxins, JOURNAL OF CHRONIC FATIGUE SYNDROME, 7, NO. 2 53-57 (2000)
Coagulase-negative staphylococcus toxins are associated with temporomandibular disorder in CFS (2004) University of Newcastle http://ogma.newcastle.edu.au:8080/vital/access/manager/Repository/uon:1519?query=CFS
Personality in development & perpetuation of CFS (2000) Qld Uni of Tech www.unboundmedicine.com/medline/eb...and_perpetuation_of_chronic_fatigue_syndrome_
Definition-based Analyses of Symptoms (2001) VUB, Belgium & University of Newcastle http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2796.2001.00890.x/full
CFS sufferers with SSIS have distinct metabolic profile (2001) University of Newcastle http://www.me-cvs.nl/index.php?pageid=4610&printlink=true&highlight=fatigue
Potassium (total body), Royal Adelaide Hospital and University of Adelaide (2001) http://nuclmed.web.auth.gr/magazine/eng/may01/origpaper2.htm http://sacfs.asn.au/medical/adelaide_uni_research_3.htm
Rickettsiae, John Graham, Flinders University, Sth Australia http://sacfs.asn.au/medical/adelaide_research.htm
Test-Retest Reliability of the Aerobic Power Index Test (2003) University of Western Australia http://www.cfids-cab.org/cfs-inform/Exercise/wallman.et.al.04.txt
Graded Exercise (2004) University of Western Australia www.mja.com.au/public/issues/180_09_030504/wal10613_fm.html www.abc.net.au/rn/talks/8.30/helthrpt/stories/s1103322.htm
Physiological Responses during submaximal cycle test (2004) University of Western Australia http://journals.lww.com/acsm-msse/A...al_Responses_during_a_Submaximal_Cycle.4.aspx
Submaximal exercise variables predict peak exercise performance in CFS? Uni of WA (2007) www.sciencedirect.com/science?_ob=A...8986c6a28ce8423c65ecaa10295e513f&searchtype=a
Association between CFS and the Corticosteroid-binding globulin gene ALA SER224 polymorphism (2004) University of Adelaide http://digital.library.adelaide.edu.au/dspace/handle/2440/55095
Post-infective and cfs precipitated by viral and non viral pathogens, EBV, Ross River Virus, Q fever (2006 Dubbo studies) http://www.bmj.com/content/333/7568/575.full?sid=a01109c6-3eb2-4786-a95c-7ca9dc13316e http://www.bmj.com/content/333/7568/0.3.full?sid=e37c825c-6c70-4b40-92aa-4e023aeab496
Long term persistance of Q fever (2010) Aust Rickettsial Reference Lab http://www.ncbi.nlm.nih.gov/pubmed/20639288
Hematologic and urinary Excretion Anomalies (2007) University of Newcastle http://ebm.rsmjournals.com/cgi/content/full/232/8/1041
Bacterial Colonosis (2007) Institute of Biotech and Molecular Science, Uni of Melb. http://www.ahmf.org/07access/07butt_final.htm
Icreased d-lactic Acid Intestinal Bacteria (2009) Institute of Biotechnology and Molecular Science www.ncbi.nlm.nih.gov/pubmed/19567398
Sleep-Wake Behaviour in CFS (2010/2011) University of NSW http://www.journalsleep.org/ViewAbstract.aspx?pid=28135
Long-chain acylcarnitine deficiency (2011) University of SA http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2010.02341.x/abstract
MRI study, brain stem dysfunction and altered homeostatis (2011) Adelaide CFS research group http://onlinelibrary.wiley.com/doi/10.1002/nbm.1692/abstract
Australian Studies in Progress
The Role of Lewis Phenotype and ABH Secretor Status in Relation to Nasal Carriage of Staphylococcal Species in Patients with CFS (started 2010, 1 year study) http://www.newcastle.edu.au/research/expertise/135166.html
Development of a new clinical diagnostic/bioassay for chronic fatigue syndrome (started 2009, 3 year study) http://www.newcastle.edu.au/research/expertise/135166.html
The Importance of Small Colony Variants (SCV's) of toxin producing Coagulase-negative Staphylococci in CFS (started 2006, 4 year study) http://www.newcastle.edu.au/research/expertise/135166.html
Australian ME/CFS Reported Deaths
19 yr old Alison Hunter of Sydney died 1996. "In the end, heart damage, massive ulceration to her throat, failure of her gut and bowel and horrendous neurological symptoms, conspired to defeat her." [1] www.ahmf.org/smh040502.html
* Alison gave a speech in Ireland at the International Meeting on CFS when she was 17. www.ahmf.org/speech.html.
Tracey Lee Ash, 26 from Adelaide, died on March 7, 2002 from CFIDS/ME related causes. "Tracey battled with CFIDS/ME/FMS and multiple chemical sensitivities for many years. Tracey constantly searched for new possibilities of getting well, but in the end wellness became a faded and unreachable distant light." [2] http://sacfs.asn.au/publications/talking_point/2002/issue_1/tracey_ash.htm
ME/CFS and the Law
Queensland mother fights to get daughter back (1999) www.abc.net.au/7.30/stories/s21850.htm
Current Australian ME/CFS Events
Australian National Radio ABC
Pace Trial. Comparison of Treatments for CFS
Guest speakers
Professor Michael Sharpe
Professor of Psychological Medicine,
University of Edinburgh,
Scotland
Richard Horton
Editor in Chief of the medical journal
The Lancet,
London
http://www.abc.net.au/rn/healthreport/stories/2011/3192571.htm
References
[1] www.ahmf.org/smh040502.html
[2] www.blueribboncampaignforme.org/ME_CFS_Memorial.html
"Chronic fatigue syndrome - Clinical practice guidlines 1997" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians http://www.tnq-support-group.net/cfs_australian_2002-guidelines-overview.html(html) http://www.myalgic-encephalomyelitis.com/cfs_australian_2002-guidelines-overview.html(html) pdf links on either site.
"Chronic fatigue syndrome - Clinical practice guidlines 2002" produced by a Working Group convened under the auspices of The Royal Australasian College of Clinicians http://www.mja.com.au/public/guides/cfs/cfs2.html(html) http://www.mja.com.au/public/guides/cfs/cfs2.pdf(pdf)
The ME/CFS guidelines, Management Guidelines for General Practioners (sponsored by the Sth Aust government and others) 2004 http://www.oiresource.com/pdf/mecfs.pdf These guidelines recommend the 2003 Canadian Clinical Criteria.
From 2005 the "Overview of a Clinical Case Definition and Guidelines for Medical Practioners, An Overview of the Canadian Consensus Document"
Authored by Bruce M. Carruthers and Marjorie I. van de Sande, came into use (Sth Australia). The inside of the front cover page of the booklet (capitals and all) states:
Australian ME/CFS Epidemics
1949-1951 800 (another source said 600) people in Adelaide (Goolwa?? outbreak or was this separate outbreak of the 1950s?), Sth Australia, became ill with what was known as Epidemic Neuromyasthenia (For more info on this outbreak see "Australian ME/CFS Research" section. Pellew RAA investigated)
1955 Perth, Western Australia. Described as "virus epidemic in recurrent waves"
1957 Brighton, Sth Australia. Outbreak described as "Coxsackie, Echo Virus meningitis and mylagic encephalomyelitis", "Epidemic myalgic encephalomyelitis," and "Benign myalgic encephalomyelitis."
ME/CFS in Parliament
On XMRV testing and medicare http://parlinfo.aph.gov.au/parlInfo...;query=xmrv;querytype=;rec=2;resCount=Default
ME/CFS Funding and Government ME/CFS funding
Since 1998 Alison Hunter Memorial Foundation has made quite an impact to the ME/CFS situation in Australia and has helped fund ME/CFS studies, along with holding some very large ME/CFS gatherings where well known ME experts have been brought to help educate our doctors and talk to the ME/CFS community. The goal of this independant organisation is to "to advance scientific knowledge and medical care." http://www.ahmf.org/aboutus.html
The Judith Jane Mason and Harold Stannett Williams Memorial Foundation (Established in 2003, funds Aust. ME/CFS and Alzheimers research studies..60% of the money goes towards the ME/CFS research) http://docs.google.com/viewer?a=v&q...NGyRVK&sig=AHIEtbSoSAuyM8RB2CUWXFEY--j_ILxIBw
In 2004 the ME/CFS Society of Sth Australia, set up a research fund for ME/CFS research which was going towards funding the Adelaide Chronic Fatigue Syndrome Research Group.. a group of ME/CFS experts who are also in practice. (Im doubtful that research fund now exists? as funding for the 2011 study of this group was funded by John T. Reid Charitable Trusts, supported by the Alison Hunter Memorial Foundation).
Australian ME/CFS Research
"Clinical Description of a disease resembling poliomyelitis seen in Adelaide", (Pellew RAA) 1949-1951, Med J Australia, 1, 944
Epidemic Neuromyasthenia (ENM) "Further investigations on a disease resembling poliomyelitis in Australia" (1955), Adelaide, Pellew RAA, Miles JAR, Med J Aust. http://www.investinme.org/InfoCentre Epidemics.htm http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2425322/pdf/postmedj00263-0008.pdf
Double-blind, placebo-controlled trial of intravenous immunoglobulin therapy (1990) http://www.amjmed.com/article/0002-9343(90)90173-B/abstract
Intravenous immunoglobulin (1997) www.amjmed.com/article/S0002-9343(97)90045-0/abstract
Cell-mediated Immunity (1992) Division of Psychiatry, Prince Henry Hospital, NSW http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1554231/pdf/clinexpimmunol00051-0078.pdf
Cytokine Production response to exercise (1994) Depart. of Infectious Diseases, Prince Henry Hospital, NSW http://cid.oxfordjournals.org/content/18/Supplement_1/S142.abstract
Longitudinal study of outcome of CFS (1994) http://www.bmj.com/content/308/6931/756.full?sid=23f733bb-f6e6-4990-bc1e-d48e2bb46919
Lactic acid (1995) The Adelaide CFS Research Group, Adelaide University, http://sacfs.asn.au/medical/adelaide_uni_research_1.htm
Maximal Oxygen uptake and lactate mechansim are normal (2002) Dept. of Physiology, University of Adelaide http://digital.library.adelaide.edu...mode=full&submit_simple=Show+full+item+record
Lactate Threshold during exercise (2004) University of Adelaide http://sacfs.asn.au/medical/adelaide_uni_research_2.htm
Molecular basis to CFS (1996) http://www.sciencedirect.com/scienc...d270a7463d1014127b2dc1e15cc6a22d&jchunk=57#57 http://www.orient-explorer.com/auiac/Prof Tim Roberts.pdf
Symptom expression & Urinary Metabolites (1996) Uni of Sydney, Uni of Newcastle, John Hunter Hosp http://www.sciencedirect.com/scienc...7361dc68f4568aac86729947fccdcf17&searchtype=a
Cognitive deficits (1997) Inflammation Research Unit, School of Pathology, University of New South Wales http://bjp.rcpsych.org/cgi/content/...na&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT
Cognitive functioning in CFS a meta analyses (2010) University of Adelaide, http://digital.library.adelaide.edu.au/dspace/handle/2440/61121
Changes in plasma lipid homeostasis (1999) Uni of Newcastle, Uni of Sydney, John Hunter Hosp. http://cat.inist.fr/?aModele=afficheN&cpsidt=1220520
Plasma fatty acids and sterols in sudden and gradual-onset CFS (2000), Uni of Newcastle http://www.deepdyve.com/lp/taylor-f...-and-sterols-in-sudden-and-gradual-lTmpQYGIgC
Dev. of lab-based tests in chronic pain & fatigue, Essential fatty acids & cholesterol, JOURNAL OF CFS, 7, NO. 2 59-62 (2000) Uni of Newcastle
Biochemical & Microbiological Abnormalities: The Dev of lab based tests and possible role of toxic chemicals (1999) Uni of Newcastle http://informahealthcare.com/doi/ab...onic+fatigue+syndrome%27%29&searchHistoryKey=
Biochemistry of Chronic Pain and Fatigue (2000) University of Newcastle, Nth Shore Hosp, Westmead Hosp. http://www.co-cure.org/infor20.htm
Erythrocyte morphology in rheumatoid arthritis & CFS, JOURNAL OF CHRONIC FATIGUE SYNDROME, 6, NO. 1 23-35 (2000)
Blood parameters indicative of Oxidative Stress associated with symptom expression of CFS (2000) University of Newcastle http://www.ingentaconnect.com/content/maney/rer/2000/00000005/00000001/art00009
Association between oxidative damage markers & temporomandibular dysfunction symptoms in CFS (2004) University of Newcastle http://ogma.newcastle.edu.au:8080/vital/access/manager/Repository/uon:1520
Free radicals in CFS: cause or effect? (2000) University of Newcastle http://www.ncbi.nlm.nih.gov/pubmed/10939298
Erythrocyte Oxidative Damage (2006) Charles Sturt University, NSW http://www.cfids-cab.org/cfs-inform/Hypotheses/richards.etal07.pdf
Moclobemide trial (2000) Uni of NSW, St George Hosp & Royal North Shore Hosp www.psychiatrist.com/abstracts/abstracts.asp?abstract=200009/090003.htm
Development of laboratory-based tests in chronic pain & fatigue. 1. Muscle catabolism and coagulase negative staphylococci which produce membrane damaging toxins, JOURNAL OF CHRONIC FATIGUE SYNDROME, 7, NO. 2 53-57 (2000)
Coagulase-negative staphylococcus toxins are associated with temporomandibular disorder in CFS (2004) University of Newcastle http://ogma.newcastle.edu.au:8080/vital/access/manager/Repository/uon:1519?query=CFS
Personality in development & perpetuation of CFS (2000) Qld Uni of Tech www.unboundmedicine.com/medline/eb...and_perpetuation_of_chronic_fatigue_syndrome_
Definition-based Analyses of Symptoms (2001) VUB, Belgium & University of Newcastle http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2796.2001.00890.x/full
CFS sufferers with SSIS have distinct metabolic profile (2001) University of Newcastle http://www.me-cvs.nl/index.php?pageid=4610&printlink=true&highlight=fatigue
Potassium (total body), Royal Adelaide Hospital and University of Adelaide (2001) http://nuclmed.web.auth.gr/magazine/eng/may01/origpaper2.htm http://sacfs.asn.au/medical/adelaide_uni_research_3.htm
Rickettsiae, John Graham, Flinders University, Sth Australia http://sacfs.asn.au/medical/adelaide_research.htm
Test-Retest Reliability of the Aerobic Power Index Test (2003) University of Western Australia http://www.cfids-cab.org/cfs-inform/Exercise/wallman.et.al.04.txt
Graded Exercise (2004) University of Western Australia www.mja.com.au/public/issues/180_09_030504/wal10613_fm.html www.abc.net.au/rn/talks/8.30/helthrpt/stories/s1103322.htm
Physiological Responses during submaximal cycle test (2004) University of Western Australia http://journals.lww.com/acsm-msse/A...al_Responses_during_a_Submaximal_Cycle.4.aspx
Submaximal exercise variables predict peak exercise performance in CFS? Uni of WA (2007) www.sciencedirect.com/science?_ob=A...8986c6a28ce8423c65ecaa10295e513f&searchtype=a
Association between CFS and the Corticosteroid-binding globulin gene ALA SER224 polymorphism (2004) University of Adelaide http://digital.library.adelaide.edu.au/dspace/handle/2440/55095
Post-infective and cfs precipitated by viral and non viral pathogens, EBV, Ross River Virus, Q fever (2006 Dubbo studies) http://www.bmj.com/content/333/7568/575.full?sid=a01109c6-3eb2-4786-a95c-7ca9dc13316e http://www.bmj.com/content/333/7568/0.3.full?sid=e37c825c-6c70-4b40-92aa-4e023aeab496
Long term persistance of Q fever (2010) Aust Rickettsial Reference Lab http://www.ncbi.nlm.nih.gov/pubmed/20639288
Hematologic and urinary Excretion Anomalies (2007) University of Newcastle http://ebm.rsmjournals.com/cgi/content/full/232/8/1041
Bacterial Colonosis (2007) Institute of Biotech and Molecular Science, Uni of Melb. http://www.ahmf.org/07access/07butt_final.htm
Icreased d-lactic Acid Intestinal Bacteria (2009) Institute of Biotechnology and Molecular Science www.ncbi.nlm.nih.gov/pubmed/19567398
Sleep-Wake Behaviour in CFS (2010/2011) University of NSW http://www.journalsleep.org/ViewAbstract.aspx?pid=28135
Long-chain acylcarnitine deficiency (2011) University of SA http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2010.02341.x/abstract
MRI study, brain stem dysfunction and altered homeostatis (2011) Adelaide CFS research group http://onlinelibrary.wiley.com/doi/10.1002/nbm.1692/abstract
Australian Studies in Progress
The Role of Lewis Phenotype and ABH Secretor Status in Relation to Nasal Carriage of Staphylococcal Species in Patients with CFS (started 2010, 1 year study) http://www.newcastle.edu.au/research/expertise/135166.html
Development of a new clinical diagnostic/bioassay for chronic fatigue syndrome (started 2009, 3 year study) http://www.newcastle.edu.au/research/expertise/135166.html
The Importance of Small Colony Variants (SCV's) of toxin producing Coagulase-negative Staphylococci in CFS (started 2006, 4 year study) http://www.newcastle.edu.au/research/expertise/135166.html
Australian ME/CFS Reported Deaths
19 yr old Alison Hunter of Sydney died 1996. "In the end, heart damage, massive ulceration to her throat, failure of her gut and bowel and horrendous neurological symptoms, conspired to defeat her." [1] www.ahmf.org/smh040502.html
* Alison gave a speech in Ireland at the International Meeting on CFS when she was 17. www.ahmf.org/speech.html.
Tracey Lee Ash, 26 from Adelaide, died on March 7, 2002 from CFIDS/ME related causes. "Tracey battled with CFIDS/ME/FMS and multiple chemical sensitivities for many years. Tracey constantly searched for new possibilities of getting well, but in the end wellness became a faded and unreachable distant light." [2] http://sacfs.asn.au/publications/talking_point/2002/issue_1/tracey_ash.htm
ME/CFS and the Law
Queensland mother fights to get daughter back (1999) www.abc.net.au/7.30/stories/s21850.htm
Current Australian ME/CFS Events
Australian National Radio ABC
Pace Trial. Comparison of Treatments for CFS
Guest speakers
Professor Michael Sharpe
Professor of Psychological Medicine,
University of Edinburgh,
Scotland
Richard Horton
Editor in Chief of the medical journal
The Lancet,
London
http://www.abc.net.au/rn/healthreport/stories/2011/3192571.htm
References
[1] www.ahmf.org/smh040502.html
[2] www.blueribboncampaignforme.org/ME_CFS_Memorial.html
.. that's heaps better. Glad someone can sort it out... that really had me confused.