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Hi folks,
I have done so many lab tests. I think I'm in a very small subgroup. My metabolism is highly disturbed, yes, (was better after Abilify). Low in private and citrulline for example. Carnitine is low etc. But my other results:
We've done a cytokine panel on TH1/2/17/Treg cytokines. The only ones elevated a IL-1beta and IL-8 (very high). All the others are low.
BDNF is low. VEGF, RANTES normal, MIP-1 only one that's elevated is MCP-1.
TGF-beta normal. TNF-Alpha low.
I got strong signs of chronic inflammation (say IMD Berlin and Lab4More), but my MRI looked normal.
My ATP has always been normal.
Thyroid hormones normal, normal cortisol. Oxidative stress yes, but who doesn't nowadays.
Very low B-cells (almost gone) and low NK-Cells (could be because I'm in bed for over three years). hymus activity low. Relative T-ceLls slightly elevated
Makrophages Migration Inhibition Factor very (!) high.
Procalcitonine a bit higher (lab comment: viral infection or inflammation) MRP 8/14 high
I'm negative be for the Scheibenbogen AAB.
Hard to find infections (HSV1/2 IgM two times positive but PCR saliva and blood negative). HVV6-B PCR in saliva waek positive but IgM negative.
And so on. Looking at the studies makes me sad.
Ability helped until tolerance occurred. Ativan helps. Apart from that we tried many things, nothing helped. Copaxone, Mestinon, 10000000 supplement protocols.....
Can't remember a viral onset.
Was often in hospital but my condition is “not explainable”. I meet the CCC, got POTS and heavy PEM from almost everything.
I'm desperate
Martin
I have done so many lab tests. I think I'm in a very small subgroup. My metabolism is highly disturbed, yes, (was better after Abilify). Low in private and citrulline for example. Carnitine is low etc. But my other results:
We've done a cytokine panel on TH1/2/17/Treg cytokines. The only ones elevated a IL-1beta and IL-8 (very high). All the others are low.
BDNF is low. VEGF, RANTES normal, MIP-1 only one that's elevated is MCP-1.
TGF-beta normal. TNF-Alpha low.
I got strong signs of chronic inflammation (say IMD Berlin and Lab4More), but my MRI looked normal.
My ATP has always been normal.
Thyroid hormones normal, normal cortisol. Oxidative stress yes, but who doesn't nowadays.
Very low B-cells (almost gone) and low NK-Cells (could be because I'm in bed for over three years). hymus activity low. Relative T-ceLls slightly elevated
Makrophages Migration Inhibition Factor very (!) high.
Procalcitonine a bit higher (lab comment: viral infection or inflammation) MRP 8/14 high
I'm negative be for the Scheibenbogen AAB.
Hard to find infections (HSV1/2 IgM two times positive but PCR saliva and blood negative). HVV6-B PCR in saliva waek positive but IgM negative.
And so on. Looking at the studies makes me sad.
Ability helped until tolerance occurred. Ativan helps. Apart from that we tried many things, nothing helped. Copaxone, Mestinon, 10000000 supplement protocols.....
Can't remember a viral onset.
Was often in hospital but my condition is “not explainable”. I meet the CCC, got POTS and heavy PEM from almost everything.
I'm desperate
Martin
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