Attn ALL those in Europe - XMRV awareness
At first I thought XMRV was another hype and didn't pay much attention to it. Then I watched the entire CFSAC conference online, including the XMRV presentation and discussion, then i read the complete scientific paper.... I'm game !
Today I searched for news in the press in our country, I'm sad to say I found only one news entry which - of course - quoted Prof.Dr. Van der Meer (CBT preacher in The Netherlands) saying the new research didn't proof anything yet and how he's seen possible causes come and go over the years.
http://www.nrc.nl/wetenschap/article2383218.ece/Chronische_moeheid_misschien_door_XMRV-virus
With all the knowledge I have gathered over the last few days, I did my best to compose an email to interest the newspaper in question to take another look at the matter.
I also wrote to the CDC, CFSAC, WPI not to forget to do research in Europe and other parts of the world....
But I'm only one person accross the pond from where it's all happening.
People who's native tongue is not English often struggle to follow complicated communications and research. Most patients are not even aware there even might be a physiological cause, they are brainwashed into believing it's in their heads or that there is no cause nor cure. I'm sure that all participating here speak sufficient English to translate knowledge and help increase awareness in their own country.
Do a google search on news casts/press publications in your country regarding XMRV... I found only 1, not even giving a correct image.
CFS/ME/FM is an international issue, we need to make sure the world is aware of that. Please take initiative and speak up in YOUR COUNTRY. Let's give the researchers a hand and path the way !
Contact me if you want to coordinate efforts or want to use my copy of the email I sent out to the CDC,WPI,CFSAC.
Thanks,
Carla-nl
At first I thought XMRV was another hype and didn't pay much attention to it. Then I watched the entire CFSAC conference online, including the XMRV presentation and discussion, then i read the complete scientific paper.... I'm game !
Today I searched for news in the press in our country, I'm sad to say I found only one news entry which - of course - quoted Prof.Dr. Van der Meer (CBT preacher in The Netherlands) saying the new research didn't proof anything yet and how he's seen possible causes come and go over the years.
http://www.nrc.nl/wetenschap/article2383218.ece/Chronische_moeheid_misschien_door_XMRV-virus
With all the knowledge I have gathered over the last few days, I did my best to compose an email to interest the newspaper in question to take another look at the matter.
I also wrote to the CDC, CFSAC, WPI not to forget to do research in Europe and other parts of the world....
But I'm only one person accross the pond from where it's all happening.
People who's native tongue is not English often struggle to follow complicated communications and research. Most patients are not even aware there even might be a physiological cause, they are brainwashed into believing it's in their heads or that there is no cause nor cure. I'm sure that all participating here speak sufficient English to translate knowledge and help increase awareness in their own country.
Do a google search on news casts/press publications in your country regarding XMRV... I found only 1, not even giving a correct image.
CFS/ME/FM is an international issue, we need to make sure the world is aware of that. Please take initiative and speak up in YOUR COUNTRY. Let's give the researchers a hand and path the way !
Contact me if you want to coordinate efforts or want to use my copy of the email I sent out to the CDC,WPI,CFSAC.
Thanks,
Carla-nl