I really think we should be asking those in power to remove all funding from the CDC CFS program. They have always used their CFS funds as a means to further humiliate patients with their psycho-nonsense and self-fulfilling negation "studies".
M.E. patients would be far better off if the CDC had never been involved! I would really like everyone to consider a campaign to remove the CDC's CFS research program. Get them out of a position to harm patients and the progress of M.E research.
You are right Jackson,
We have to fight, in many many ways, protests, sending letters to the FDA,NIH,calling the Univertities that have so far replicated the study, sending letters and calling congress and even the president, there's is a phone number where we can call and leave a message to the president, there is also the white house webpage where you can send messages to the president.
if we all do it specially those who are very well spoken and know and believe that XMRV and MLVs are real, somebody will pay attenion eventually, somebody will, send links of everything and anything regarding the WPI findings and how the CDC has been covering this up for decades, again you can contact many people, and the media as well.
there's millions of people sick with CFS in the world, we need to be more organized and do something about it, they got away with it before not only once but twice, this time they stand no chance, past generations didn't have the internet available back then, but now we can stay informed and maybe coordinate some plan of action
is just surreal and criminal how the CDC has been treating thousands of Americans treating them like second class citizens and many times labeling them as hysterical people, im am so full with rage right now,millions of lives are at stake because of the actions of the CDC, the blood supply has been contaminated for a long time by now and there's no way around it.
it's so obvious that there is something infectious going around among the American people i have lived in other coutries, and never but never i have heard of ME/CFS,Fibro,Autism and even MS, too bad that now i am infected with something too, in my family nobody has a history of CFS,Fibro,Autism,MS Lupus not even cancers and i have quite a large familiy and now i have brain demyelination after having a broken condom incident back in May and many other symptoms that resemlbe HIV, but yet i have tested negative for HIV,HTLV and every other known to man stds out there, to me there is no doubt and will never be any doubt that there is another retrovirus out there and XMRV and MLVs fit exatcly the description and the symptoms that i have.
simple as this, to rule out ME/CFS and even MS you have to rule out first many many other conditions including HIV and HTLVs, you don't need to be a scientist to figure this things out, it's obvious that there's something else out there.