The consensus on the CAA thread seemed to be that the CME materials were fine for those PWC who are more mild. Either they are or they're not, but that seemed to be the one thing we all could agree on.
Personally, I wouldn't give them to my doctor now that my CFS is so much worse and because now I have a different viewpoint about them but in the past when I could work I would have as Rebecca did and I was trying to see it from her point of view.
Cort thinks they're fine and he's even said that the CME by the CDC are okay for PWC who aren't that bad off.
I'm trying to be diplomatic. Clearly, even advocates are giving them out to their doctors as Rebecca said she did.
I mean no disrespect but I did want to mention that they are harmful for PWC who are in severe stages. That's what we all agreed on so that's where I was coming from here. I wasn't trying to cause that argument to come into this thread. I felt it needed to be said because even though those materials didn't cause a problem for Rebecca with this doctor, they can cause problems for other PWC who are worse off or, could be bad news if given to the wrong doctor.
Yes, I want all references of CBT and GET removed from the CME for all of us because I think they can cause harm to any of us but that's what I think, others here have made it clear they disagree and I wasn't trying to take that up with Rebecca and Cort here.
I reworded it because I think I'm being misunderstood. I'm sorry about that.
Also, I thought this interview was current when I wrote this but I just went back and saw that Cort said it was before XMRV was discovered. We were both posting at the same time.
Cort, aftermath was really right about that! This is the kind of stuff we need to know. It sure makes me wish I could get out there and do more to advocate for us.