Thank you, Cort, for your excellent article.
Considering the CDC, in 1999, apologized to Congress for diverting money designated for CFS research during the "Outbreak of Mass Hysteria" at Lake Tahoe in 1984; admitting the amount of somewhere between $9-13 million dollars, as seen in the YouTube video, "XMRV- Requiem for a Spectre," background music of which is "Out of Balance," is bad enough. Now that it's been recognized and had over 5,000 peer-reviewed articles published, as well as named by the CDC as a real disease/syndrome, with accompanying diagnosis and treatment suggestions, plus the head of that department demoted after the NIH study was released on 08/23/2010; I know funding for research is beyond overdue. I believe this is a political problem for the CDC of such massive proportions that they don't want further investigations, since all the negative fallout will go straight back to them. (Always follow the money).
Meanwhile, those of us who have it THANK those bold enough to take their own paths of discovery trying to ease the suffering of so many millions around the world. NEVER GIVE UP!
I wish I could even convince my Physician husband and daughter of the real suffering, but they still think I am just lazy. My husband has not read the first article about either CFS/ME or Fibromyalgia. Any article I send to my daughter ends with a negative relpy.
So I try to plug on through the day, knowing that exerting myself only leads to further setbacks. I am at a loss of what to do, but for the fact that my Immunologist has me on Valtrex again and I am improving very slowly. Also taking supplements recommended by another Rheumatologist in Sacramento. I've said enough, but am only through for now.