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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I ended up having to leave the work i was doing part time which I loved due to social security all cause i could work 2 hrs per week, they then got the expectation that i could work 15 hrs a week and they wanted me to be doing that so put me under threat to have my benefits cut off if I didnt.
In the end due to the added pressure of trying to deal with social securities expections which there was no way I could possibly meet and I then crashed way further, my specialist said I wasnt to work at all. So I had to quit my job. It's all their fault I arent working part time now.
(Im in Australia).
In the United States, the Social Security Administration is set up so there is not such thing as a little bit disabled. You are either fully and permanently disabled or you can work. For many, there is no private disability.
Once on SSDI or SSI, you cannot retain your benefits if you can work - even if the number of hours is so small that you make less money working than you do receiving benefits.
The United States government does have a trial period where you can re-attempt to be employed, but it is transitional. At some point if you can work part-time, even if it does not begin to cover your expenses you are considered employable and lose your benefits.
It is a catch - 22. Many who can work a few hours a week, earning money that would raise them out of the poverty of SSDI or SSI benefits, risk losing even those meager benefits because of the way the rules are set up.
Once again, only on private disability is there such a thing as a little bit disabled.