Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I want David Bell to do the talk. Knowledgeable, humorous, down-to-earth, and to the point. Besides which he is retired and open to doing talks from what I know without a profit motive.
I think one angle the talk can come from is how unsolved illnesses are still treated in the same way as illnesses like MS/ seizures before the scientific basis is found.That way, not only are we talking about CFS specifically but about how illness is viewed in our society in general -- e.g. you could be healthy today but what if you fell down ill with a mysterious illness tomorrow? How would researchers, doctors, society, your family, workplace, insurance, etc. treat you? Something even healthy people could relate to.
The point of giving a talk at TED or a similar group (the Clintons use to attend a group annually which now escapes me) is the number of influential and wealthy people with altruism who go to them. Perhaps someone will get interested in helping get seed money for CFS research.
The 50 million is an interesting statistic. What percentage of the population. I ask because I would like to apply that percent to the population of my country and raise awareness here too. Thanks.