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"Are you Disabled?" (April 15 blog post by woman with ME)

Dolphin

Senior Member
Messages
17,567
April 15 blog post by woman with ME.


Looks at and explains models of illness & disability e.g. Medical Model, BioPsychoSocial Model & Social Model


Explains why the social model of disability is not a perfect fit for ME e.g. even with support many won't be able to work full-time


Discusses a little the new report on the PACE Trial and the biopsychosocial approach, "In the Expectation of Recovery".


https://tipsforme.wordpress.com/2016/04/15/are-you-disabled/
 
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taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
good question "are you disabled?", my states disability service deems ME/CFS people not disabled as they view it instead as a "sickness". (a cop out to prevent them having to provide disability services for ME/CFS something I have got a court case against them for currently).

There is so much politics which go into words as "disabled".

So are you "disabled" or "sick"? How you are termed can and does affect things for many of us. One of these words over the other can mean whether you will be given the support you need or not.
 
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Messages
1,055
I identify as disabled and describe myself as having limited mobility. Yes, it took a few years to accept it, for the first 3 I had the belief that I would get better and thought of myself as ill. Now I accept my condition as a chronic disability, having my application or a blue badge accepted a few years back really hit home.
 

Jenny TipsforME

Senior Member
Messages
1,184
Location
Bristol
I identify as disabled and describe myself as having limited mobility. Yes, it took a few years to accept it, for the first 3 I had the belief that I would get better and thought of myself as ill.
One of the things I touch on in the post is the tension between hoping to get well and identifying as disabled which seems like a permanent identity change. Another way to see it can be that even if we get back to 100% we can still identify on a personal level as Disabled, because we'll still have had the lived experience of being disabled. We'll always see the world differently due to our experience of ME.