Are you convinced?
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Sushi
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I can't vote cause I don't think it is so simple. If the question were "Are you convinced that XMRV is 'a player?'" I'd vote yes. But how and what it is doing, is not clear yet. I am XMRV positive by culture and feel sure from different treatments that I have tried and how I have responded that its role is significant, but I doubt if there is a single cause. More like a toxic soup with some kind of domino effect.
At the same time I do think that we probably won't get well without dealing with XMRV as it's effect on the immune system is pretty clear.
Sushi
thanks for your input, sushi
you mention a good pt. i should have clarified the Q
anything helping xmrv?
anne_likes_red
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What Sushi said. 
(Bring on more studies!)
(Bring on more studies!)
Sushi
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Couple of things: a remedy meant for viruses, and now more significantly I am thinking and hoping that GcMAF is helping. I'm getting a lot of die-off symptoms and similar response to others who have gotten "functionally well."
Sushi
What Sushi said.
(Bring on more studies!)
anne thanks for your input. so you like red?
sushi you say "die off" what do you mean? please
Sushi
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Die Off is the everyday term for herxheimer reaction. (http://en.wikipedia.org/wiki/Herxheimer_reaction). Basically your detox system get overwhelmed with dead-critter-bodies, and you feel like crap. In the case of XMRV, it may well be the retrovirus envelope, which is known to be toxic.
Lots of fun stuff to learn here!
Sushi
alex3619
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Hi, I am not convinced that XMRV causes CFS. How can I be, there is not enough evidence!
What I am convinced of, with data as of today, is that XMRV (and related viruses) are the leading hypothetical contenders for a cause. It is my current working hypothesis. It has to be investigated, to prove it or disprove it. Only quality well funded research can do that. So I support XMRV research - how could I not?
Bye
Alex
What I am convinced of, with data as of today, is that XMRV (and related viruses) are the leading hypothetical contenders for a cause. It is my current working hypothesis. It has to be investigated, to prove it or disprove it. Only quality well funded research can do that. So I support XMRV research - how could I not?
Bye
Alex
SOC
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What Alex said.
Okay, but people are getting tested for it and treating it. I think we are at the point in science to confirm 2 characteristics of CFS; that is, 1. causation is viral 2. virus malfunctions immune system.
Trials on Valganciclovir at Stanford confirm this. Most (9/12) people with CFS in the trial are having significant reduction in symptoms. I wonder why? Because CFS is caused by a RETRO virus. case closed. Heavy metals, toxins, pesticides, blah blah blah....
alex3619
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Hi SaveMe,
This I will concede: ME/CFS is probably from retroviruses, and it probably includes XMRV. There is no certainty in science until the studies are done. We also have many other pathogens - treating any of those will reduce symptoms, as will treating any other problems. Treating ME/CFS today is often more like trying to treat a brain tumour with an aspirin - it reduces the pain and inflammation, but it is not a cure. When we understand more, and clinical trials on antiretroviral drugs commence and finish, we will know lot more.
Bye,
Alex
This I will concede: ME/CFS is probably from retroviruses, and it probably includes XMRV. There is no certainty in science until the studies are done. We also have many other pathogens - treating any of those will reduce symptoms, as will treating any other problems. Treating ME/CFS today is often more like trying to treat a brain tumour with an aspirin - it reduces the pain and inflammation, but it is not a cure. When we understand more, and clinical trials on antiretroviral drugs commence and finish, we will know lot more.
Bye,
Alex
I believe that the WPI are on the right track. What convinces me is the way governmental departments seem to put pressure on any XMRV research not Just the UK or US or other country's.
I have followed this subject of disinformation in the UK 20 years .
Barriers are being put in place instead of true research.
I know that the UK media outlets are only reporting a one sided story.
And that goes for Parliament. Lies Lies Lies
I have followed this subject of disinformation in the UK 20 years .
Barriers are being put in place instead of true research.
I know that the UK media outlets are only reporting a one sided story.
And that goes for Parliament. Lies Lies Lies
i agree shelby its a shame
taniaaust1
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I cant vote as my answer isnt either of those.. i really dont know.
alex3619
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Moderator: Removed name that could be someone's real name, as opposed to membername. is a nick of someone who asked all the same questions in chat, not a real name. The questions you ask are all amply dealt with in the forums, the posts do not advance the debate, and one of your threads made absolutely no sense. You would be better served by using the search function and asking questions on the already existing threads on these topics. Bye, Alex
SOC
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Alex gives wise advice here.