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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Are you a twin?

Nielk

Senior Member
Messages
6,970
Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email denlander@aol.com
 

FancyMyBlood

Senior Member
Messages
189
Derek Enlander The Mount Sinai ME/CFS Research and Treatment Center will immediately initiate its first research cohort . This will be in ME/CFS genetic research. We are seeking patients who are twins, if you are a twin or know of a ME/CFS patient who is a twin I would like you to contact me on my email denlander@aol.com

I'm a (dizygotic) twin, but live in The Netherlands. So unfotunately I don't think I can be of any help, but feel free to let me know if I'm wrong.
 
Messages
26
Location
Florida
I am a identical twin

I responded to Dr. E's request for twins. Have not heard back.

Also, I told him about the CFS Twin Study I was in back in the 1995 era done by the Univ of Washington.
He may be looking over their data. I don't know really. Just that he has not responded.
 

Nielk

Senior Member
Messages
6,970
The office has been closed for the past 3 days because of Jewish holiday. I'm sure they will see it on Monday. If you still don't hear from them let me know and I'll contact them. I put Fancymyblood in touch with them.