Anyone with OI who doesn't get lightheaded/dizzy?

Jwarrior77

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I have POTS and CFS however when I stand up I really don't get lightheaded or dizzy. I do have trouble breathing, tachycardia, fatigue, and a strong want to lay down which I then do. But I was just wondering if there is anyone out there that doesn't experience light-headedness. Thanks.
 

Sushi

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I have POTS and CFS however when I stand up I really don't get lightheaded or dizzy. I do have trouble breathing, tachycardia, fatigue, and a strong want to lay down which I then do. But I was just wondering if there is anyone out there that doesn't experience light-headedness. Thanks.
I have OI as confirmed by an autonomic specialist and while my blood pressure starts to drop within a minute after standing I don’t feel lightheaded and close to fainting until I have been standing much longer. How long that takes varies from day today.
 

Learner1

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I thought being dizzy on standing was part of the definition of OI, though I will say mine has gotten better with treatment. I can dig in the garden without getting dizzy or blacking out finally.