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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Anyone else in Switzerland? Doctors, Advocacy, RECOGNITION!!!

awol

Senior Member
Messages
417
Hello,

Just wondering if anyone else on this forum is in Switzerland. Have you found a doctor who knows ANYTHING about this condition? Where?

What is happening here to improve doctor awareness and patient rights? As far as I can tell this might just be one of the worst places of all to have this illness.
 

Jerry S

Senior Member
Messages
422
Location
Chicago
Hi awol,

eric_s is Swiss. Here's his intro post from May 3rd.

Best wishes,
Jerry

PS: If it's any consolation, there are no doctors in Chicago who understand and treat ME/CFS. There are a few integrative doctors who are sympathetic, but they treat ME/CFS is if it were only general fatigue. I'd have to travel to see an experienced ME/CFS doctor. I'm too sick to do that, and I couldn't afford it anyway. :(
 

awol

Senior Member
Messages
417
Thanks for the contact Jerry.

I am sorry to hear that things are bad in Chicago too. It really is a lot to ask of patients that we deal with being sick AND with paying for real research AND with educating doctors all at the same time. Craziness.
 
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