Waiting.
I'm waiting.
My test was done in mid September under very hush-hush conditions. I was, along with others in a previous small study, asked to come in and have my blood drawn without being told what for. When the Science news broke I was told it was for XMRV using both PCR and antibody tests through VIP by way of Mikovich. I was told on October 26 that the results would be ready "in about a month," that I would be given the results, but that the lab was "swamped."
There is some chance, though, that our blood got put into a research pool and that I may never get specific results. WPI has a blood bank using blood from my doctor's office, though I've been told that ours came later.
So . . . I'm waiting, but I don't know if I'm waiting in vain. My doctor's office is now very involved with this research but also not anxious to get test results done other than for informational purposes, and as far as I know are not starting treatment protocols at this time. I have an appointment next week and will find out more directly what may be my next step.
Their response to XMRV was posted by Cort in the "XMRV Resources" section under "The Scientific Paper" titled "Excellent Overview from Gordon Medical Associates" (though they were not a "partner" in the Science study).
http://www.gordonmedical.com/gma_xmrv_public_announcement_10-15-2009.pdf
So . . . I'm still waiting. I feel anxious about it, not that I need it to turn out either way (although I think maybe I do and will be surprised, and disappointed, if it is negative), but that I want to know if I am waiting for something or nothing. I also feel anxious about WHAT DOES IT ALL MEAN? For me, for all of us who are sick, for our children and friends, for treatment, for being able to afford treatment, for being able to tolerate treatment . . . I think I just want to know so that I can make the adjustments and then move forward. I am SO glad that I get to spend this difficult waiting time with all of you on this forum. If nothing else, it feels great to know that I'm not alone.
I will share my results when they come both in the polls and in more detail if there is interest.