Anyone else have dysautonomia without OI?

Dysautonomia and which type?

  • OI (POTS, NMH)

    Votes: 13 72.2%
  • Dysautonomia when moving limbs

    Votes: 1 5.6%
  • No dysautonomia

    Votes: 0 0.0%
  • Other type of dysautonomia, post in comments

    Votes: 4 22.2%

  • Total voters
    18

Remi

Senior Member
Messages
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Update: now 6 months off SSRI, some dysautonomia symptoms have worsened. Ability to stand, too. I would now rephrase the topic title to OI without POTS or NMH. And would adjust the poll choices. 💡
 

xebex

Senior Member
Messages
675
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1,318
Update: now 6 months off SSRI, some dysautonomia symptoms have worsened. Ability to stand, too. I would now rephrase the topic title to OI without POTS or NMH. And would adjust the poll choices. 💡
yes i would say i have orthostatic intolerance but do not qualify for a POTS diagnoses. In a bad crash though I do get very obvious symptoms of POTs, but it fades after a few days of rest. i think i am more likely to have NMH but even that is "mild" though how mild can mean completely incapacitated for days to weeks after standing up for longer than 20minutes I don't know.