Antivirals Side Effects and total time?

[frozenborderline]

Valtrex has some issues with renal toxicity in the renal tubes, hence the commandment that goes with it to drink water, water, water. If you have underlying kidney disease, it can be patently neurotoxic (https://www.amjmed.com/article/S0002-9343(15)00182-5/pdf).

Famvir is somewhat toxic for my liver (elevated enzymes) hence we monitor closely.

If the natural stuff works for you, then that's great. Maybe worth a try if you have not explored that route to your satisfaction.

I think your objections are perfectly reasonable. Far as I'm concerned, you don't have to defend following a gut feeling about what is right for you.

Well I mean, i don't think all "natural treatments" are created equal. I just think that IVIG seems to treat immunodeficiency well. And that emodin seems to have a broad range of protective effects.

I have been declining so rapidly that I'm somewhat obsessed with finding a "magic bullet" in terms of something that will help acutely and somewhat rapidly. we'll see how that goes

 

[BadBadBear]

I really hope you can find it. I am looking for a magic bullet, too, but for now am settling for a shield and club. Absolutely no point wasting time on AV's if IVIG is the right course for you.

 

[heapsreal]

You can always try avs again later and stopping sometimes can give you an indication if it really was helping in someway etc.

As @BadBadBear has indicated, low IG is an obvious abnormality that id jump at first and treatment may help viral issues. Its quite possible with low IG that you have other bugs going on so wouldnt see improvements from avs until those bugs are treated. Id still keep avs on your list and maybe trial them again later if ivig isnt the entire answer???

 

[adambeyoncelowe]

Can you try inosine pranobex (Imunovir)? Eastern European brands are cheaper (Groprinosin, Neosine). It's pretty mild but boosts NK cell function.

 

[heapsreal]

Can you try inosine pranobex (Imunovir)? Eastern European brands are cheaper (Groprinosin, Neosine). It's pretty mild but boosts NK cell function.

You can find it on ebay now.

 

[adambeyoncelowe]

Yes, exactly. It's used as a general flu and herpes treatment over there. It's even in cough syrup.

 

[nsdn]

@debored13
I am on 1g

Famvir 1g / day?

Thanks.

 

[ebethc]

@debored13
I am planning to reduce my AV dose to the minimum I need once I stop having flare ups and relapses. I had hoped I'd be able to reduce my dose over the summer as I don't usually get sick in the summer, but for now I still need the full dose.

I am on 1g, I had hoped to go to 750 mg and then possibly down to 500 mg.

what's the "full dose"? Is 1g the reduced dose or the full dose?

thx

 

[BadBadBear]

what's the "full dose"? Is 1g the reduced dose or the full dose?

thx

For me 1 g is full dose and I am still on it. Have not felt like I can try reducing it yet.

 

[nsdn]

@BadBadBear 1 g. / day or 1 g. / 8h?

Thanks!

 

[BadBadBear]

@BadBadBear 1 g. / day or 1 g. / 8h?

Thanks!

I take 500 mg/BID for 1g total per day.

Not the 4g per day recommended by some. Though I probably could now, the start up was pretty rough on just 1 g per day.

 

[nsdn]

Thank you very much @BadBadBear

I have to pay the price of the medicine. I can not take very high doses. I've thought about starting with 250 mg every 8 hours and maybe later going up to 500 mg every 8 hours.

What I do not know is when to go up or how to make that decision. I am from Spain and here NO ONE antiviral guidelines.

Greetings.

 

[BadBadBear]

My doc had me start at 250 mg per day only until the side effect were bearable, then add another 250 mg dose 12 hrs later. After that add 250 mg 8 hrs apart. Eventually I could take 500 b.i.d. The dose raises were tough.

I also pay out of pocket.

I have an ongoing thread about my Famvir experience, https://forums.phoenixrising.me/index.php?threads/mestinon-famvir-whoa.55803/