Amyloid Neuropathy?

Francelle

Senior Member
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Location
Victoria, Australia
How many have been steered onto the 'Amyloidosis' pathway because of your symptoms? Symptoms such as peripheral, motor and autonomic neuropathy can be exhibited in this group!

Across the board I have found that generally I have been listened to, as well as, extensively tested and believed (except by one Neurologist who suggested a possible somatisation disorder - grrrr). Most though, still don't want to credit my multifareous symptoms with M.E/Fibro but seek to find another more mainstream diagnosis such as Amyloidosis, Scleroderma, Porphyria Etc Etc.

Is this typical of other's experiences?

One very wise and insightful specialist said to me last year, that 'In ten years times we will be embarrassed as to our relative ignorance in 2009'. He was wonderfully validating!