Phew.. hell of a title. And with that as well, I'm not sure where to post this because it falls under so many symptoms and categories.. But I'll try to keep it short..
Basically, I have Hyperammonemia of the Liver, as well as hyperammonemic encephalopathy and neuropathy. I have candida.. sibo.. potentially h pylori, a 'yeast overgrowth' of other nature, which according to my doctor isn't necessarily candida (go figure). I have very bad dysautonomia to the point where my emotions are nonexistant and I cant feel any of the ridiculous amounts of pain I had before, anymore.. only tingling and a skin crawling feeling (in my abdomen.. gallbladder/stomach/vagus nerve).
I'm allergic to almost everything you can think of.. which is a problem in and of itself and literally killing me, because I'm eating foods that are constantly giving me immune reactions, and I have yet to find even the slightest CLUE of an answer to what to do about that, anywhere.
And the bottom line is nothing works.. I'm basically on my way out the door here, my aldosterone levels have been almost '0' for half my life (which is the actual root cause of this all), my other hormones are dropping rapidly, my liver function, etc etc yadda yadda and so on.. it's all real fun to talk about.
Atm I'm trying to figure out if there's a way to basically.. prolong my life, though I'm not quite sure I know why anymore. But mostly it's the fact that I am suddenly now INCAPABLE of sleep (very much different from the insomnia ive had most of my life) and that's a nightmare that's actually far worse than the idea of my upcoming death.
I've got a (very) few last ditch effort supplements to try.. to at least help me with my nerves and sleep, but I need to deal with the other stuff.. particularly the ammonia, candida/sibo, and maybe as a bonus the nerve stuff I guess.
I know a lot about nutrition, supplements, and vitamins/minerals in particular.. however I know very little about many (most) specific amino acids that go with these things. Though I know that, obviously, too much protein is what leads to the ammonia issues.. along with contributions from bacteria overgrowths.
So I'm looking specifically for the following, which I'll pose in seperate questions..
1) What amino acids are most beneficial for hyperammonia, on an otherwise low protein diet? I have read that glutamine, carnitine, and arginine help with this, but I've not had any success with those.. and I know that there are others. In otherwords.. (since my GI doc basically shrugged his shoulders) when patients do a low protein diet but take amino acids to fill in the gaps for hyperammonemia/encephalopathy - what specific aminos acids are they taking? Which ones are most essential for health and recovery?
More specifically.. which amino acids should I try to avoid? Methionine for instance? I believe people with my condition(s) often have high methionine, correct?
2) Which amino acids are most helpful in the removal of candida/sibo waste and acetaldehyde? Or best taken to help deal with such problems?
3) Which amino acids are most beneficial for nerve repair.. specifically dysautonomia? I've read that BCAAs are great for this.. however I had a terrible reaction to them myself.. one of the worst ive ever had to anything, and Im not sure if this just means I needed to go slower and take WAY less or what? Are there other amino acids that can help with the nervous system, neuropathy, and nerve repair in general?
Well that ended up being not the least bit "short" at all, as usual.. I've got way too much stuff on my plate. Would appreciate any specific answers to the questions I've asked.. though I'm not sure how many people even know this information themselves. If you can help though, thanks in advance.
Basically, I have Hyperammonemia of the Liver, as well as hyperammonemic encephalopathy and neuropathy. I have candida.. sibo.. potentially h pylori, a 'yeast overgrowth' of other nature, which according to my doctor isn't necessarily candida (go figure). I have very bad dysautonomia to the point where my emotions are nonexistant and I cant feel any of the ridiculous amounts of pain I had before, anymore.. only tingling and a skin crawling feeling (in my abdomen.. gallbladder/stomach/vagus nerve).
I'm allergic to almost everything you can think of.. which is a problem in and of itself and literally killing me, because I'm eating foods that are constantly giving me immune reactions, and I have yet to find even the slightest CLUE of an answer to what to do about that, anywhere.
And the bottom line is nothing works.. I'm basically on my way out the door here, my aldosterone levels have been almost '0' for half my life (which is the actual root cause of this all), my other hormones are dropping rapidly, my liver function, etc etc yadda yadda and so on.. it's all real fun to talk about.
Atm I'm trying to figure out if there's a way to basically.. prolong my life, though I'm not quite sure I know why anymore. But mostly it's the fact that I am suddenly now INCAPABLE of sleep (very much different from the insomnia ive had most of my life) and that's a nightmare that's actually far worse than the idea of my upcoming death.
I've got a (very) few last ditch effort supplements to try.. to at least help me with my nerves and sleep, but I need to deal with the other stuff.. particularly the ammonia, candida/sibo, and maybe as a bonus the nerve stuff I guess.
I know a lot about nutrition, supplements, and vitamins/minerals in particular.. however I know very little about many (most) specific amino acids that go with these things. Though I know that, obviously, too much protein is what leads to the ammonia issues.. along with contributions from bacteria overgrowths.
So I'm looking specifically for the following, which I'll pose in seperate questions..
1) What amino acids are most beneficial for hyperammonia, on an otherwise low protein diet? I have read that glutamine, carnitine, and arginine help with this, but I've not had any success with those.. and I know that there are others. In otherwords.. (since my GI doc basically shrugged his shoulders) when patients do a low protein diet but take amino acids to fill in the gaps for hyperammonemia/encephalopathy - what specific aminos acids are they taking? Which ones are most essential for health and recovery?
More specifically.. which amino acids should I try to avoid? Methionine for instance? I believe people with my condition(s) often have high methionine, correct?
2) Which amino acids are most helpful in the removal of candida/sibo waste and acetaldehyde? Or best taken to help deal with such problems?
3) Which amino acids are most beneficial for nerve repair.. specifically dysautonomia? I've read that BCAAs are great for this.. however I had a terrible reaction to them myself.. one of the worst ive ever had to anything, and Im not sure if this just means I needed to go slower and take WAY less or what? Are there other amino acids that can help with the nervous system, neuropathy, and nerve repair in general?
Well that ended up being not the least bit "short" at all, as usual.. I've got way too much stuff on my plate. Would appreciate any specific answers to the questions I've asked.. though I'm not sure how many people even know this information themselves. If you can help though, thanks in advance.
