Right, I think I've still got my invitation for the study "proper" (I declined to partake in the formal interview stage) so that leaves 2 interesting options, either:
1) my comments somehow found their way into a pile of loosely coupled "patient responses"... (from another year)
Or (more likely)
2) other patients mirrored my thoughts exactly, thus showing how widespread the disdain really is (eg, it wasn't just me thinking that way!)
So now I'm thinking, if my dates are wrong, these patient responses are gathered regularly, and maybe poor ones are binned, and when some "slightly favourable" reponses are collected from the same group, they get published like this... all mere speculation on my part I guess.
(Side note: for anyone who's interested, you get pages and pages of hand outs each week, and "homework" and a good deal of them had PACE in the footer (copyright notice). Oh how us lazy f£&£cks enjoyed reading about The Deconditioning Model of CFS)