Last month I saw a geneticist and although I was 1 point shy of an official hEDS diagnosis he told me he considered me as having EDS without all the skin manifestations. He also said my age was a factor (55) and if I’d been seen at a younger age I would have been officially diagnosed with it. My official diagnosis is Generalized Hypermobility Spectum Disorder. He told me to not get caught up in the name and the GHSD could cause just as many problems as EDS like POTS, MCAS, etc. I would like to thank @JenB for raising awareness about this condition. Now I am following @jeff_w ’s suggestions to be evaluated for possible CCI, etc.