As I said: Waiting for a complete transcript or summary from the government.
I don´t take credit. Here I transl. some gathered talking points by Daniel Loy https://twitter.com/loy_daniel_de
Deputy Stüwe mentions the research agenda: "I promise we will fight together to stabilize investments in research." He ends with the words: "We see you, we hear you!"
Another MEP continues: "Those affected deserve that we finally help them." He speaks about the cardinal symptom of #MECFS, the so-called post-exertional malaise (#PEM). He highlights the intersection of #MECFS and #Longcovid.
"Those affected suffer in silence, dear colleagues!"
The MP talks about the stigmatization and ignorance that those affected have to experience.
L Flindemann points out: "#MECFS is not a mental illness!" MP emphasizes that the disease is not new. He describes the severity of #MECFS.
First of all, thank those affected who have been committed to demanding change in #MECFS for years. "We promise you that we will do everything we can to make a positive change."
With regard to therapy studies, she mentions challenges in the cooperation between politics and the pharmaceutical industry and appeals to all those involved to overcome hurdles.
linda_lobster mentions the current difficulties in supply and access to help. "#MECFS is a devastating diagnosis. Nevertheless, many sufferers are grateful to be diagnosed in the first place."
The MEP talks about difficult diagnostics and ... Enlightenment of the medical profession and calls for further training.
AtesGuerpinar follows for the left. First of all, thank those affected who have been committed to demanding change in #MECFS for years.
"We promise you that we will do everything we can to make a positive change."
The MP talks about the frequency of #MECFS and the severity & complexity of the disease.
"Those affected suffer in silence, dear colleagues!" The MP talks about the stigmatization and ignorance that those affected have to experience.
The MP highlights the socio-economic costs and the high suicide rate of the disease. He calls for more research investment for #MECFS. Talks about the connection to #Longcovid. He mentions the clinical study group led by @C_Scheibenbogen
The deputy says: "It is our job to create solutions." "The illness and the suffering of those affected must be taken seriously. I would like to ask the medical profession in particular."
Dr. Herbert Wollmann. The deputy is committed to the promises of the coalition agreement. He emphasizes that the government is already working on improving the supply situation.
