3 HIV DRUGS WITH POSSIBLE EFFICACY AGAINST XMRV, by Mindy Kitei

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Jeez, liverock. You're impatient:). We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones
 

leaves

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Yes I am impatient too!!
Thanks so much for your frequent updates, they are very important for us.
 

Tembo

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Thanks for the update Mindy - fantastic as always:)

Dr Jones - your blog is wonderful -my chronic fatigued riddled family lives for your updates - we are so happy to see such improvement already! You should be renamed Pioneer Woman :)
 

SOC

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Jeez, liverock. You're impatient:). We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones
Thanks for keeping us all informed, Jamie. I, too, am a PWC with a college-age daughter struggling with ME/CFS. We have no hope at the moment of finding a doctor who would prescribe arv's, so we haven't tested for XMRV, yet. We're treating HHV-6 in the meantime and hoping to learn from your experience, so we can treat XMRV should we need to in the future. We appreciate your sharing.
 

liverock

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Jeez, liverock. You're impatient:). We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones
Sorry if I got the wrong impression-I think it was the 'finger in the dyke' sentence that made me think things were not progressing. Good to hear that you are and looking for new initiatives.:Retro smile:

Have you considered using Humic Acid along with your anti-retrovirals?

It seems to be effective against HIV and some other viruses such as Coxsackie and the HPV's.

http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102276321.html

http://www.humichealth.info/

http://www.supremefulvic.com/resources.php
 

Daffodil

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hmmm....that article posted by mindy said something about drugs that might help clear the XMRV reservoirs....they've gotta be saying that to be provocative. we are nowhere near able to clear any retrovirus reservoir yet!

sue
xoxo
 

gu3vara

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Jeez, liverock. You're impatient:). We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones
Are you considering trying to get your hands on gcmaf injections in the future, so far it appears like the most promising treatment but quite expensive and still hard to find
 

shannah

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hmmm....that article posted by mindy said something about drugs that might help clear the XMRV reservoirs....they've gotta be saying that to be provocative. we are nowhere near able to clear any retrovirus reservoir yet!

sue
xoxo
That caught my attention too. I didn't think the reservoirs had even been identified yet. Does she know something we don't?
 

Daffodil

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no i think people just want us to read the next installment. they will likely just name some of the stuff they are trying to use to clear the HIV reservoirs and tell us it should be tried for XMRV too.

i have been reading a lot about HIV lately and i have noticed that every week , there is some new article with the word "cure" in the title. its all a publicity stunt i think

sue