3 HIV DRUGS WITH POSSIBLE EFFICACY AGAINST XMRV, by Mindy Kitei

[Mindy Kitei]

I just posted a new article on CFS Central.

Mindy Kitei
CFS Central
http://www.cfscentral.com

 

[Sasha]

Thanks, Mindy - informative, as always!

 

[Stone]

Great article and in a format that works well for my CFS brain. Thanks so much!

 

[liverock]

Dr Jamie Deckoff-Jones and her daughter have both been found positive for XMRV and been using tenofovir and raltegravir since March.

Not having much success unfortunately.

http://treatingxmrv.blogspot.com/

 

[jdeckoffjones]

Jeez, liverock. You're impatient. We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones

 

[leaves]

Yes I am impatient too!!
Thanks so much for your frequent updates, they are very important for us.

 

[Tembo]

Thanks for the update Mindy - fantastic as always

Dr Jones - your blog is wonderful -my chronic fatigued riddled family lives for your updates - we are so happy to see such improvement already! You should be renamed Pioneer Woman

 

[SOC]

Jeez, liverock. You're impatient. We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones

Thanks for keeping us all informed, Jamie. I, too, am a PWC with a college-age daughter struggling with ME/CFS. We have no hope at the moment of finding a doctor who would prescribe arv's, so we haven't tested for XMRV, yet. We're treating HHV-6 in the meantime and hoping to learn from your experience, so we can treat XMRV should we need to in the future. We appreciate your sharing.

 

[liverock]

Jeez, liverock. You're impatient. We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones

Sorry if I got the wrong impression-I think it was the 'finger in the dyke' sentence that made me think things were not progressing. Good to hear that you are and looking for new initiatives.:Retro smile:

Have you considered using Humic Acid along with your anti-retrovirals?

It seems to be effective against HIV and some other viruses such as Coxsackie and the HPV's.

http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102276321.html

http://www.humichealth.info/

http://www.supremefulvic.com/resources.php

 

[Daffodil]

hmmm....that article posted by mindy said something about drugs that might help clear the XMRV reservoirs....they've gotta be saying that to be provocative. we are nowhere near able to clear any retrovirus reservoir yet!

sue
xoxo

 

[gu3vara]

Jeez, liverock. You're impatient. We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

Warmly,
Jamie Deckoff-Jones

Are you considering trying to get your hands on gcmaf injections in the future, so far it appears like the most promising treatment but quite expensive and still hard to find

 

[shannah]

hmmm....that article posted by mindy said something about drugs that might help clear the XMRV reservoirs....they've gotta be saying that to be provocative. we are nowhere near able to clear any retrovirus reservoir yet!

sue
xoxo

That caught my attention too. I didn't think the reservoirs had even been identified yet. Does she know something we don't?

 

[Daffodil]

no i think people just want us to read the next installment. they will likely just name some of the stuff they are trying to use to clear the HIV reservoirs and tell us it should be tried for XMRV too.

i have been reading a lot about HIV lately and i have noticed that every week , there is some new article with the word "cure" in the title. its all a publicity stunt i think

sue