2nd XMRV Positive in the UK

[DysautonomiaXMRV]

Hi everyone.

I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
I've added my result to the forum poll.

I'll take a break for a while, and I do hope that in the mean time people here can try and get tested as soon as possible.

It's nearly 19 years since I was diagnosed and told I was suffering from 'unresolved grief' and 'somatization'.
I wonder back then, if the XMRV test had been available - how life would have turned out?

Thank you for all your help and support and for this great website that offers patients the vital ability to communicate.

 

[Smulan]

Hi everyone.

I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
I've added my result to the forum poll.

.

cut

Thanks for posting. Good luck DysautonomiaXMRV!

 

[joyscobby]

UK XMRV Positive 2

Take care of yourself and take it easy.:sofa: I am so glad for you. :victoryo not know what to say but PM if you want to talk.

From UK Positive 1 who is no longer alone thank you:Sign Good one::Sign Good Job:

 

[Hysterical Woman]

Hi everyone.

I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
I've added my result to the forum poll.

I'll take a break for a while, and I do hope that in the mean time people here can try and get tested as soon as possible.

It's nearly 19 years since I was diagnosed and told I was suffering from 'unresolved grief' and 'somatization'.
I wonder back then, if the XMRV test had been available - how life would have turned out?

Thank you for all your help and support and for this great website that offers patients the vital ability to communicate.

Congratulations??????????

Please take care of yourself. Looking forward to seeing you back when you can.

Maxine

 

[flybro]

Thanks for posting Dys,

and take seriuosly good care of yourself.

 

[sproggle]

Thanks for posting your results DysautonomiaXMRV and keeping us in the loop. The truth will out!

Take care, I'm sure it will take a while to sink in...

 

[MEKoan]

Dys,

:victory:




Koan

 

[Lily]

Hi everyone.


I'll take a break for a while, and I do hope that in the mean time people here can try and get tested as soon as possible.

It's nearly 19 years since I was diagnosed and told I was suffering from 'unresolved grief' and 'somatization'.
I wonder back then, if the XMRV test had been available - how life would have turned out?

Thank you for all your help and support and for this great website that offers patients the vital ability to communicate.

We're here for you. Take care. Looking forward to hearing from you again when you're ready.

 

[kit]

Thank you . . . for this great website that offers patients the vital ability to communicate.

Absolutely. Thank you Phoenix Rising Forum administrators et. al. who make it possible for us all to know what is going on.

And thanks to Joyscobby and Dys, thanks for posting your results. Take good care. :Sign Peace:

 

[sleepwalking]

It must be a relief to finally know what has caused all this misery and stolen precious years. My sincerest best wishes and healing thoughts.

 

[Kati]

Dys,

:victory:




Koan

Same as Koan- she couldn't have said it better!
dys, not to worry, there will be other XMRV+ in UK in no time.

 

[anne_likes_red]

Hi everyone.

I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
I've added my result to the forum poll.

I'll take a break for a while, and I do hope that in the mean time people here can try and get tested as soon as possible.

It's nearly 19 years since I was diagnosed and told I was suffering from 'unresolved grief' and 'somatization'.
I wonder back then, if the XMRV test had been available - how life would have turned out?

Thank you for all your help and support and for this great website that offers patients the vital ability to communicate.

Hey, :Retro smile:
Thanks for sharing your news and adding to the poll.
Take the time you need.
(But I know we'll all be richer if you don't become a total stanger.)
Anne.

 

[Martlet]

I'd never wish a retrovirus on anyone, but congratulations on your result. At last, you have something to point to.

I echo everyone's sentiments. Don't stay away any longer than you must. I value your input!

 

[gerwyn morris]

cut

Thanks for posting. Good luck DysautonomiaXMRV!

all the very best-----

 

[Advocate]

Hi everyone.

I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
.

I'm glad your long wait is over. Come back when you can.

 

[rebecca1995]

Congratulations, DysautonomiaXMRV!

I hope the positive result will open up new treatment options for you in the future--and that you get a bit more respect from medical professionals in the meantime!

Take that, Simon Wessely and Myra "if it was there we would have found it" McClure!

 

[fds66]

Thanks for sharing your result. Take as much time as you need.

 

[starryeyes]

I'm glad you know now and thanks so much for sharing your news with all of us. Don't stay away too long.



tee

 

[CJB]

 

[Knackered]

I'm wondering whether I should get tested now, I'm not sure whether my doctor would sign for it, if not what would be my best course of action?

DysautonomiaXMRV:
Do you have Canadian Criteria CFS? If you do I'm gonna get the test done I think.

I'm excited as hell now.