I like the idea that you get a diagnosis of MUS 'after testing'
I was ill for 20 years before it was found I had -
EDS III - dx from the NHS after hassling my GP for SEVEN YEARS to help me.
Mitral Valve Prolapse with regurgitation - from a private practitioner after NHS failed to refer me.
Mast Cell Activation Disease - I had to pay two separate allergy/immunology specialists to test me for this who do wok in the NHS, but I couldn't see them as the wait list was 2 years in the first case and never in the second as im not allowed to see Drs over the border in England.
Chronic Bacterial infections x 3 - had to pay privately to find this out, despite on of them being Cpn and me having a history of pneumonias, and lung fibrosis and the literature being chocked full of chronic Cpn causing long term breathing issues etc.
Positive Anti Nuclear antibodies - speckled, private testing - NHS still not interested.
Ongoing chronic anaemia - Gp throws tablets at it for past 5 years - never been investigated.
So do I still have MUS, according to White et al?