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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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2012 Aviva Contest--Funding Opportunity for Medical Equipment for ME

frenchtulip

Senior Member
Messages
760
The 2012 Aviva Contest is beginning. A ME patient has submitted a project for funding for medical equipment for the new complex chronic diseases clinic in Vancouver. Please see project info below. Voting in the 1st round runs from Oct. 1 to Oct. 15. Please help to spread the word about this contest. Thanks.
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Hello,

My name is Kati. I am a patient with myalgic encephalomyelitis, also known as chronic fatigue syndrome. This disease, along with fibromyalgia,multiple chemical sensitivites and Lyme disease are the most neglected and understated diseases of them all.

The British Colombian government has funded a clinic for patients suffering from these disease and research will also take place. As the clinic is being set up, patients would like to contribute to the effort by helping funding medical equipment needed for diagnosis and treatment of these diseases.

Be assured we are not asking for money, but we are asking for a bit of your time. Aviva contest is a voting contest, and winners will provided funding for their ideas. We need your votes!

Here is how you can vote: From October 1st to October 15th, click either of these link below and vote. And you're done. You get 15 votes, and can only vote for us once daily. You need to be canadian to vote.

Please take a look at our Aviva page. You can vote here directly without using facebook: http://www.avivacommunityfund.org/ideas/acf13624

And our Facebook page, where you can vote by clicking the yellow button. Please “like” us and we will remind you to vote. https://www.facebook.com/AvivaCCDC

We would appreciate your support, please pass it on. The success of this clinic would benefit all patients in Canada, because it would set a precedent on how to treat us the patients and promote research.

Thank you very much on behalf of all patients in Canada.
 

Aileen

Senior Member
Messages
615
Location
Canada
Just voted. 3 votes so far. The website is slow right now so be patient.

This year they have "achievement" badges. The first one is the Rally Badge given for ideas that gain 10 supporters. That means 7 more people need to vote for us to get it. The more badges we collect, the better we are going to look to the general public and the more attention we will attract!

Get voting Canada!!
 

frenchtulip

Senior Member
Messages
760
AvivaCanada(1).jpg

You can vote at the Aviva Contest page at: http://www.avivacommunityfund.org/ideas/acf13624 Or through the Facebook page at: https://www.facebook.com/AvivaCCDC Poster created by an artist-advocate for our use in the contest!
 

ixchelkali

Senior Member
Messages
1,107
Location
Long Beach, CA
Overview:

Well over 1 million Canadians suffer from chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome), fibromyalgia, multiple chemical sensitivities and Lyme disease and do not get adequate care and treatments by our health care system.

A new Complex Chronic Diseases Clinic will open in 2013 in Vancouver to address these diseases and provide the support that its sufferers deserve.

Through this project, we want to help fund medical equipment needed in order to properly diagnose these patients, get the care they need and train staff in performing these tests according to the standards of the field.

The first testing equipment needed is a tilt table, with cardio-vascular monitoring- and blood pressure machine. This helps physicians understanding the extent of autonomic nervous system dysfunction called Neurally Mediated Hypotension (NMH) or Postural Orthostatic Tachycardia Syndrome (POTS).

Secondly, a new protocol called "Stevens' protocol" consist of a 2 consecutive days VO2 Max exercise test, tests cardio-vascular endurance and tests for the a pathology unique of patients with myalgic encephalomyelitis. A special exercise bike is needed, along with cardio vascular monitors, including an oxygen and carbon monoxide sensor is needed.

Holter monitors would be great for patients to get their hearts monitors for 24 hour testing.

Proper training will be needed for professionals to use these monitors properly.

These 2 tests provide objective proof of illness which has been lacking in the past. Moreover patients will also need Holter monitors.
 

ixchelkali

Senior Member
Messages
1,107
Location
Long Beach, CA
I found this easier to register and vote for than the Chase contest. I could even do it brain-fogged. And they don't require access to your Facebook data.

C'mon, folks, let's help Canadian patients get a treatment center set up. If we don't help us, who will?
 

Aileen

Senior Member
Messages
615
Location
Canada
In order to get into the semi-finals we need to be in the top 10 at the end of this round. Yesterday we were in 82nd spot. We need to do much better folks.

Right now we have 307 votes. The next "badge" we can earn is the "Podium Badge" for 500 votes in a round. Let's shoot for the podium today!!
 

Nielk

Senior Member
Messages
6,970
In order to get into the semi-finals we need to be in the top 10 at the end of this round. Yesterday we were in 82nd spot. We need to do much better folks.

Right now we have 307 votes. The next "badge" we can earn is the "Podium Badge" for 500 votes in a round. Let's shoot for the podium today!!

Let's get that Podium Badge!

You don't need to be a Canadian to vote. Anyone can vote.
 

Merry

Senior Member
Messages
1,378
Location
Columbus, Ohio, USA
Voted. I was surprised to find out I was already registered with Avia. Must have voted in a previous contest but have no memory of this. :confused:
 

Aileen

Senior Member
Messages
615
Location
Canada
There is some good news and bad news. Let's start with the good news. We have moved up from 82nd overall to 64th position yesterday. That's a big improvement but we have a long way to go. We also earned our Podium Badge for receiving 500 votes :thumbsup: We currently have 572 votes. Way to go!!!

Now for the not-so-good news. We have 341 supporters but only 572 votes. This is a DAILY voting contest! We need you to vote every day! Please vote daily and make sure your friends and relatives understand this also. There are 11 days left in this round.
 

ixchelkali

Senior Member
Messages
1,107
Location
Long Beach, CA
The good news is that we're moving up and are now rank 64th. The bad news is that so far there are only 383 supporters. The good news is that I know we can do better. C'mon people. If we aren't for us, who will be?

This one is really easy to register for and you don't have to give them access to all your personal (Facebook) information to do it, if you don't want to.

Let's get behind our Canadian friends. We need centers of excellence like this, and the research done will benefit us all.
To make it easier, here's the link again: http://www.avivacommunityfund.org/ideas/acf13624

VOTE TODAY!
 

Nielk

Senior Member
Messages
6,970
It's now up to 713 votes and 404 supporters.

We can do this...together!
 

Aileen

Senior Member
Messages
615
Location
Canada
We need to be top 10 in our category (large). All numbers unofficial. Currently we are 23rd with 720 votes. How badly do you want patients properly tested in a place that will be conducting research? These are the numbers we need.
The current leaders are:
1. a garden at a Ronald McDonald House - 3680 votes
2. sensory therapy room for kids - 3323 votes
3. renovate a space for 12 cultural agencies - 2410 votes
4. new animal shelter - 1744 votes
5. community cancer clinic - 1679 votes
6. skateboard park - 1677 votes
7. high school for sports equipment - 1622 votes
8. school playground - 1610 votes
9. animal rescue program - 1494 votes
10. barrier free playground - 1421 votes
 

Aileen

Senior Member
Messages
615
Location
Canada
We're movin' on up... :)
Thursday in 64th overall ... yesterday up to 50th overall.
More importantly, we have made a small step in our category, going from 23rd to 22nd place!

We are currently only 15 votes behind 21st place & 67 votes behind 20th place.
Let's get into that top 20 today. Please vote and remind your friends and family to vote DAILY.
 

Kati

Patient in training
Messages
5,497
Have you voted today? We are still moving up, this is exciting. Help from all around the world is needed. Thanks!
Here is a new poster, feel free to share:
image.jpg
 

Aileen

Senior Member
Messages
615
Location
Canada
Here are the latest results: we are still climbing but slowed down from 50th to 48th overall yesterday.
But... in the all-important group category (large) we moved from 22nd place up to 17th!! Congratulations for cracking the top 20!!:thumbsup:

But ... we need to be in the top 10 at the end of the round to get to the semi-finals. We have a lot of work to do and this round is nearly half over. We really do need to jump serveral more places today. As you can see, we have some ground to cover but we can do it TODAY!!!

15. children's beaches - 1369 votes
16. group center - 1319 votes
17. medical equipment (us!) - 1256 votes
18. animal hospital - 1246 votes
19. gym club - 1242 votes
20. splash pad - 1230 votes

Please vote. We need you and your friends and relatives to vote EVERY DAY!!! our competitors are.