• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.


  1. frozenborderline

    Scary headrushes and dizzy spells

    Does anyone get head rushes that are disorienting and scary with this illness. ? Almost like a hot flash or something? Its different from normal pots stuff in my experience... that's why I ask Orthostatic intolerance feels very characteristic to me , and what I'm describing is sort of new and...