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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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small fiber neuropathy

  1. W

    Possible Stiff Person Syndrome

    I was diagnosed with small fiber neuropathy after covid or the mrna vaccine. My burning and pain in my body( arms, legs, back, spine etc several body parts) matches the symptoms of it. However, I have got mobility issues too( problem with standing too long, could not walk more then 10 minutes...
  2. W

    Underlying disease in small fiber neuropathy

    Hi. I really wonder if fellow friends of the forum found their underlying conditions of sfn (small fiber neuropathy). Also , hopefully I wonder if they treated them succesfully. I was diagnosed with sfn through a skin biopsy from my ankle after covid jab which I am not really sure the reason...
  3. SWAlexander

    NIH team documents various types of neuropathy after COVID vaccination

    In a recent study posted to the medRxiv* preprint server, researchers investigated if coronavirus disease 2019 (COVID-19) vaccination could result in neuropathic symptoms. Vaccines against severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) essentially reduce morbidity and mortality...
  4. C

    SFN without pain?

    Hello, I have recently received a diagnosis of apparently autoimmune SFN based on the results of a corneal confocal microscopy and a sudoscan test. (I live in Spain, and here it is impossible to get a reliable skin biopsy). I also have elevated FGFR3 antibodies, which seems to be associated...
  5. Emmarose47

    Pain in hands and feet

    I always get pain in hands and feet before or at beginning of a flare ... It's like an intense nerve tingling / aching and crushing feeling .. Do others get this ? Do we know why it's hands and feet ?
  6. Pyrrhus

    Exercise Intolerance: Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS (Joseph et al., 2021)

    A new publication by the team of Phillip Joseph, Anne Oaklander, and David Systrom, which I personally find exciting. Insights from Invasive Cardiopulmonary Exercise Testing of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Joseph et al., 2021)...
  7. ChookityPop

    Could this be neuropathy?

    I have this thing that bothers me. Could it be PN or SFN? For example when I type a lot on my computer I get this crazy burning pain/sensation in my arms. All the way from my wrists to high up towards my shoulders. Its very painful and I have to stop typing. Anyone else? It also comes and...
  8. xebex

    Small fibre neuropathy weirdness?

    I haven't been diagnoses with SFN, mainly because i haven't bothered to go to Doc as i have no pain which seems weird. What i do have is numb skin on my ankles so when i shower the sensation of the water on my skin is different to that of the rest of my legs, I also seems to be loosing hair on...
  9. pattismith

    Characterization of dermal skin innervation in fibromyalgia syndrome 2020

    Characterization of dermal skin innervation in fibromyalgia syndrome Dimitar Evdokimov, Philine Dinkel, Johanna Frank, Claudia Sommer, Nurcan Üçeyler Published: January 13, 2020 Abstract Introduction We characterized dermal innervation in patients with fibromyalgia...
  10. men100

    Diagnosis of small fiber neuropathy by corneal confocal microscopy

    Hi. A specialist in autonomic nervous system and chronic fatigue syndrome has recommended me to check if I have fine fiber neuropathy. He told me there was a new test called corneal confocal microscopy. There are still weeks left for the ophthalmologists to give me the result, but they sent me...
  11. Elisa

    Evidence of Nerve Damage in About Half of Fibromyalgia Patients

    Evidence of Nerve Damage in About Half of Fibromyalgia Patients http://www.sciencedaily.com/releases/2013/07/130730163138.htm July 30, 2013 — About half of a small group of patients with fibromyalgia -- a common syndrome that causes chronic pain and other symptoms -- was found to have damage...